By Jeanne Hambleton -fibromite – freelance journalist
While in this column we stray into all things wellbeing and health in general, this is allegedly the home of fibromyagia news (and poor spelling – blame FM and CB).
With this in mind for those who are suffering with fibromyalgia – pain 24/7, chronic fatigue, sleep disorder, depression, cognitive behaviour, IBS, dizziness – shall I go on – there are said to be 100 symptoms – and a compromised immune system, it is time to stand up and be counted.
Well if like me you are fed up with the cold and wet weather making your pains worse, and are very aware there is no cure or Government funding for research into FM, you will feel a bit peeved. There is not a lot going on to find a cure.
So I decided to think about a different type of project which I hope will achieve results.
With the support of Folly Pogs Fibromyalgia Research (the driving force by the national annual Fibromyalgia Conferences – next one March 27/31 2014) we are looking for fibromites who will make a pledge to raise a sum of money for a new research project. The pledge should be an amount you can manage, from a fund raising event, to support this research project.
We could call this THE LOOSE CHANGE FM RESEARCH PROJECT. Yes we want your loose change and research funds from fund raising please – from you, your friends, FM groups and anyone you speak to please who are sympathetic. We will also accept blue and brown notes and cheques.
This project will belong to you – a patient owned FM research project – – if you raise funds you can support this project. This could bring us a step closer solving to the mysteries surrounding fibromyalgia. There will be an award for the most money raised by a group and an award for the individual.
So my letter to Father Christmas this year will be asking for folk to remember charity begins at home and to hear lots of people will be fund raising for our LOOSE CHANGE project. If you are able to support us please email me at loosechangeFMproject@follypogsfibro.org.
1,000,000 FIBROMYALGIA LIKES Wanted Please
Folly Pogs are so fed up with the lack of progress that they are looking for your support for the 1,000,000 LIKES page on FACEBOOK. Please find time to support this on FACEBOOK.
It was in sheer desperation that Folly Pogs FM Research pushed for a LIKE page on FACEBOOK. We had reasoned if we have the backing of 1,000,000 LIKEs in the social media we just might stand a chance of reinstating the APPG on FM.This is the All Party Parliamentary Group on Fibromyalgia. We have been without an APPG on FM voice in Parliament for three whole years.
At the last election in 2010 most of the former members decided they were too busy with their ministerial duties and opted out. This include two Ministers. As a result the former chair of the APPG on FM, Rob Wilson MP (Reading) and Rosie Cooper MP (West Lancashire) prospective chair of a new APPG on FM, were unable to recruit new members. I had a nice letter from Rosie Cooper MP and if approached by your MPs (when you have badgered him or her) I am sure Rosie Cooper would be willing to start the APPG on FM again.
We are now appealing to ALL fibromites everywhere and especially those who use FACEBOOK, to please write to their MP and ask them to represent you on a new APPG on Fibromyalgia. Log on to http://www.parliament.uk/ to find out who is your MP. If he/she says no – ask why not. Your MP should represent you as a constituent.
With the backing of ONE MILLION FIBROMYALGIA LIKES – voices – we will have a stronger case to get a voice in Parliament reinstated. Personally I do not worry what colour his tie is if he is working for FM funding by the Govt. to find a cure, and the re-instatement of the APPG on FM and maybe even a national Fibromyalgia Flag Day.
Tell everyone you know please. Thank you for your support and the Trustees from both FMS SAS now FMS SES and Folly Pogs FM Research in anticipation of your support. Two clicks and another vote towards our ONE MILLION FIBROMYAGLIA LIKES. THANKS.
Please log on to https://www.facebook.com/FollyPogsFibroResearchUk/likes and just click LIKE in the little box and watch the numbers increase.
Tell your friends and family please. Thank you for your support in anticipation of your help. A very BIG THANKS. Jeanne