MPs DEBATE FIBROMYALGIA IN WESTMINSTER UK TUESDAY MAY 5

From the FMS Global News Desk (UK)

by Jeanne Hambleton Copyright 2009

If you have fibromyalgia you will be interested to hear a debate tomorrow Tuesday May 5, in the Westminster Hall of the Houses of Commons, London.
The debate will be led by Rob Wilson MP, the chairman of the All Party Parliamentary Group for Fibromyalgia in support of people with FMS.

While we have no idea what will be said but a debate about FMS in the ‘corridors of power’ must be worth listening to. This could be almost historical, as I cannot remember such a debate before. This can be viewed worldwide on your computer. With Hansard and the national press attending the debates we could have national newspaper coverage raising more awareness about this rotten invisible disability.

If he had asked me what I would say I would begin – Dear Mr. Wilson please tell the MPs that there are two million of us suffering with this condition. That is the number diagnosed and we believe there are many more with ‘mysterious’ pains that are also fibromyalgia, but their doctors think they are imagining the pain or it is all in their head. Sounds familiar?

We know IT IS REAL. We have been there, done that, got the pain and the tee shirt.

Please mention that the USA claim fibromyalgia is now reaching worldwide epidemic proportions and this condition is for life. Mr. Wilson, Sir, please remind MPs that ME was given £8m for research around about 2006, but those of us with fibromyalgia are still waiting for help. We have no cure. The cause is unknown, our pain is as bad as ME and we too need funding for research.

What is £8m the way the Government is spending money at the moment. I am sure Mr. B would not even miss it but it would certainly help us.

We have pains 24/7, chronic fatigue, sleep disorders, cognitive problems, not to mention IBS and RLS, gastric problems, headaches, dizziness, and many more.

The debate, you should really listen to, starts at 9.30am in Westminster Hall tomorrow May 5 and lasts until 11am. As we do not do mornings – cannot get out of our own way and stumble all over the place first thing – we will probably still be in our dressing gowns enjoying a good cup of coffee, or tea – what ever is your tipple. Just switch on your computer. Then log into

http://www.parliamentlive.tv/Main/Live.aspx

Once on the site click the date May 5 and you are offered a list of four debating areas. You need bottom left, Westminster Hall, and then click Rob Wilson – support for people with fibromyalgia. I hope you can listen to everything that is said… fingers crossed.

If you have not checked in and read this article before 9.30am British Summer Time on Tuesday May 5 I am told this is recorded and can be found on this site after the debate.

You will need to search for Fibromyalgia, Private Members’ Debate: Westminster Hall May 5 at 9.30am – support for people with fibromyalgia – Mr. Rob Wilson MP.

HUGE NUMBER OF LISTENERS

FMA UK, the national Fibromyalgia Association has notified over 100 groups and it is thought the programme will attract a big audience.

Jean Turner, one of the FMA UK Trustees writing to members said, “This is fantastic news and we are grateful to Rob and fellow MPs for offering to take our concerns and raise awareness of fibromyalgia.

“If your MP has been supportive to our cause in the past, please let him know about the debate and ask him to attend and give his support.

“Please use this opportunity to contact your MP. I am sure we can actually reach every single one. They have all been contacted by us in the past so are well aware of fibromyalgia. Let us raise the profile by just one little telephone call to your local MP’s office, it is as easy as that.”

INTERNATIONAL FIBROMYALGIA AWARENESS DAY MAY 12

The debate comes a few days before International Fibromyalgia Awareness Day on Tuesday May 12. This is also Florence Nightingale’s birthday. She was the inspiration for this international event. After her work in the Crimean War she became very ill and it is said she was bed ridden for the rest of her life. It is now thought she had fibromyalgia and chronic fatigue.

People with fibromyalgia all over the world unite together on this day to proclaim the international awareness day. They successfully raise awareness and funds for research selling the only FMS CD Fibro What? This is a comedy CD by Dom Collins with a serious fibromyalgia song and three very funny tunes to make the family laugh.

This May 12 trustees of FMA UK and folk with fibromyalgia from all over the UK will be meeting Rob Wilson MP and other MPs supporting the condition in Westminster to commemorate the international event.

If you have any comments about the debate or need information about the Fibro What CD do email me. I would love to hear from you.
Email jeannehambleton(@)mac.com.

MAY 12 LAUNCH NEW MILTON KEYNES SUPPORT GROUP

OR WHAT DO RUNNER BEANS HAVE TO DO WITH FIBROMYALGIA?

Making the most of the International Fibromyalgia Awareness Day, Ali Burbridge, the new Group Leader, of the first Milton Keynes FMS Support Group, is launching her support on that day. On her posters she asked, “Have you been diagnosed with fibromyalgia or do you know someone that has and who does not know where to turn? Do you want to speak with someone that understands and has this ‘invisible’ illness?”

Well Ali is the one to talk to. Email her at alimkfms@hotmail.co.uk or ring her on 0845 428 2027 for MKFMSG.

If you want to get in her good books, ask her about the runner beans… I am not joking… this is serious stuff. What do runner beans have to do with fibromyalgia? That is a good question. That has got your guessing. I am not telling. You will have to go the meeting or contact Ali…he he he.

Enjoy the live debate. Talk soon Jeanne

FOR MORE HEALTH STORIES SEE http://jeannehambleton77.wordpress.com

Advertisements

About jeanne hambleton

Journalist-wordsmith, former reporter, columnist, film critic, editor, Town Clerk and then fibromite and eventer with 5 conferences done and dusted. Interested in all health and well being issues, passionate about research to find a cure and cause for fibromyalgia. Member LinkedIn. Worked for 4 years with FMA UK as Regional Coordinator for SW and SE,and Chair for FMS SAS the Sussex and Surrey FM umbrella charity and Chair Folly Pogs Fibromyalgia Research UK - finding funding for our "cause for a cure" and President and co ordinator of National FM Conferences. Just finished last national annual Fibromyalgia Conference Weekend. This was another success with speakers from the States . Next year's conference in Chichester Park Hotel, West Sussex, will be April 24/27 2015 and bookings are coming in from those who raved about the event every year. I am very busy but happy to produce articles for publication. News Editor of FMS Global News on line but a bit behind due to conference. A workaholic beyond redemption! The future - who knows? Open to offers with payment. Versatile and looking for a regular paid column - you call the tune and I will play the pipes.
This entry was posted in 13606, 16816416, 16816701, 18473400, 18473734, 18475482, 18477189, 18477433, 18542595, 18637166, 18638001, 18961528, 19138205, 19555105, 19771093, Article, Awareness, Britain feeds, Brussels feeds, CBS News, Chronic Fatigue, Diseases, EU news, Europe feeds, Family, Fatigue, feed://feedproxy.google.com/bydls, Feeds, feeds://feedburnercomwordpressmytb-2, Fibrohugs, Fibrohugs News, Fibromyalgia, Fibromyalgia Association UK, Fibromyalgia Blogs, Fibromyalgia News, Fibromyalgia News UK, FM, FMA UK, FMS, FMS Global News, Global Health Vision, Global News, Health, http://feedburner.google.com/fb, http://feedburner.google.com/fbX, http://globalhealthvision.wordpress.com, http://jeannehambleton77.wordpress.com, http://www.myspace.com/jeannehambleton, IBS, Invisible Illness, Invisible Illnesses, Irritable Bowel Syndrome, Jeanne Hambleton, Journalist UK, London UK, London UK Feed, Michigan feeds, MPs, News, News UK, News USA, Pain, Pain 24/7, Politics, RSS, RSS Feeds, Sleep Disorders, Sleep Disturbance, Technorati, Tenderpoints, Twitter, UK feeds, US, USA, USA feeds, Washington D.C. City Feed, World, World feeds, WORLD FIBROMYALGIA DAY, World News, World Wide, Worldwide and tagged , , , , , , , , , , , , , , , , , , , , , , , , , , . Bookmark the permalink.

Leave a Reply

Please log in using one of these methods to post your comment:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s