MEP RESPONSES TO PARLIAMENTARY FIBROMYALGIA DECLARATION

By Jeanne Hambleton © 2008

This week up to two million people suffering with mysterious aches and pains which confused doctors and specialists all over the world, will be writing to their European Members of Parliament in Brussels urging them to sign a declaration to support raising awareness about fibromyalgia

The declaration has been put forwarded by the European Network of Fibromyalgia Associations representing 11 countries – Belgium, Denmark, France, Germany, Israel, Italy, Netherlands, Portugal, Spain, Sweden and the United Kingdom.

In a response to a request from the East Hants Borders Fibromyalgia Support Group aka Folly Pogs, two south east of England MEPs have supported the campaign to achieve greater recognition for this disease across Europe.

Sharon Bowles MEP, wrote, “I agree that it is essential that more is done to raise awareness. Access to information for both health professionals and patients is a key element in achieving a more effective and efficient system to treat this disease. With greater awareness and knowledge, sufferers will receive more support from medical professionals and hopefully achieve greater confidence to tackle this disease with a more positive outlook.”

Dr Caroline Lucas, MEP, confirmed her earlier support for fibromyalgia groups, would sign the declaration and “welcomed the activity to raise awareness and improve understanding of fibromyalgia across Europe.”

Andrew Reed on behalf of Nigel Farage, MEP, who apparently declined to sign the declaration, wrote, “ UKIP’s position, in this matter, is conditioned essentially by the consideration that the European Union, whose initiative you recommend, lacks the democratic accountability necessary to avoid its constitution as a fearsome autocracy, endangering freedom, justice, prosperity and peace; and that the primary effect of its legislation is to accelerate its progress towards that condition. Whatever the merits, or otherwise, of some of the EU’s legislation, and declarations, therefore, it is incumbent upon UKIP’s representatives, in the EU’s consultative assembly – both on principle and as the expression of their electoral mandate – to oppose them and any aspect of them, which increases their scope. I trust that you will bear this in mind, however pressing you may consider the subject of any particular declaration, or piece of EU-legislation, to be.”

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About jeanne hambleton

Journalist-wordsmith, former reporter, columnist, film critic, editor, Town Clerk and then fibromite and eventer with 5 conferences done and dusted. Interested in all health and well being issues, passionate about research to find a cure and cause for fibromyalgia. Member LinkedIn. Worked for 4 years with FMA UK as Regional Coordinator for SW and SE,and Chair for FMS SAS the Sussex and Surrey FM umbrella charity and Chair Folly Pogs Fibromyalgia Research UK - finding funding for our "cause for a cure" and President and co ordinator of National FM Conferences. Just finished last national annual Fibromyalgia Conference Weekend. This was another success with speakers from the States . Next year's conference in Chichester Park Hotel, West Sussex, will be April 24/27 2015 and bookings are coming in from those who raved about the event every year. I am very busy but happy to produce articles for publication. News Editor of FMS Global News on line but a bit behind due to conference. A workaholic beyond redemption! The future - who knows? Open to offers with payment. Versatile and looking for a regular paid column - you call the tune and I will play the pipes.
This entry was posted in Arthritis, Autoimmune Diseases, Awareness, Back Pain, Britain, British, Canada, CBS News, Central Nervous System, CFS, Chronic Fatigue, Chronic Fatigue Syndrome, Chronic Pain, Chronic Pain Disorders, Chronic Widespread Pain, Diseases, Europe, Feeds, Fibrohugs, Fibrohugs News, Fibromyalgia, Fibromyalgia Blogs, Fibromyalgia News, Fibromyalgia News Belgium, Fibromyalgia News Denmark, Fibromyalgia News Deutschland, Fibromyalgia News France, Fibromyalgia News Israel, Fibromyalgia News UK, Fibromyalgia News Wisconsin, Fibromyalgia Press Releases, Fibromyalia News Germany, FM, FMS, FMS Global News, Global News, Health, Health Canada, Jeanne Hambleton, Journalist UK, Medical Research, News, News Belgium, News Denmark, News France, News Korea, News Montreal, News Norway, News UK, Pain 24/7, Research, Spain, Support Groups, Surrey and Sussex, Tenderpoints, TMJ, USA and tagged , , , , , , , . Bookmark the permalink.

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