Help for young people misdiagnosed, isolated and forgotten


Help for young people misdiagnosed, isolated and forgotten

For the first time two charities are coming together to reach out to young people of
Sussex suffering from a very painful and distressing illness.

The Association of Young People with ME, AYME in partnership with the
Fibromyalgia Support Group for Surrey and Sussex are presenting a day of
information and support for young people and their parents and professionals at
Jury´s Inn in Brighton on Saturday Feburary 2nd.

Jo Fisher from the Fibromyalgia Support Group for Surrey and Sussex said Fibromyalgia
Syndrome (FMS) is a complex chronic condition that can cause widespread pain and body
stiffness, insomnia, chronic fatigue, cognitive problems and many other unpleasant
symptoms. Sadly many sufferers with Fibromyalgia can go undiagnosed or are
misdiagnosed for years due to a lack of knowledge and understanding within the
health care profession. ”

Natalie Arney, aged 25 from Lewes, East Sussex, said: “I work full time but have
periods of serious fatigue and other symptoms. I also suffer from Fibromyalgia so
am in constant pain.”

Katie James, project worker at AYME said: “Young people with these illnesses are
often isolated and forgotten. The day will give them a chance to meet new friends,
to talk about issues that are affecting them and share their experiences of living with
Fibromyalgia and M.E/CFS.”

If you know any young person with Fibromyalgia or ME/CFS who might be
interested in attending please let them know about the young people´s gathering
and contact the Fibromyalgia Support Group for Surrey and Sussex on 01403
255450. Email jo… For more information go to:

Note to the Editor:
Interviews with young people with Fibromyalgia in your area are available. Please
contact Katie James on 0781 6989 067.

FMS Global News

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About FMS Global News

Folllowing Rick Usher's death in December 2008, at his request in September of that year, I had agreed, as his principal contributor and an experienced journalist, to run the FMS Global News service due to his heavy commitments to music and raising research funds through this avenue. Following his sad and sudden death I hope to continue his work as he would have wished.
This entry was posted in Awareness, Britain, Chronic Fatigue Syndrome, Chronic Pain, Europe, Fibrohugs, Fibrohugs News, Fibromyalgia, Fibromyalgia Blogs, Fibromyalgia News, Fibromyalgia News UK, Fibromyalgia Press Releases, FM, FMS, FMS Global News, Global News, London UK, London UK Feed, News Toronto, News UK, Ottawa, Ottawa City Feed, RSS Feeds, Sleep Disorders, Somatic Pain, Support Groups, Surrey and Sussex, Tenderpoints, Toronto, Toronto City Feed, US, USA, Washington D.C. City Feed, Washington DC, World, World News. Bookmark the permalink.

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