Repost of Phoenix Rising Interview with Author and Advocate Rik Carlson

by Cort Johnson

This is a repost of the Rik Carlson interview. If you missed the
interview because the website was down my apologies. The server that hosts the Phoenix Rising website went down leaving it (and thousands of other websites) off the net for five days.

Rik Carlson grew up with the ideals of the sixties and busted his
chops in the harsh reality of the small business world. In late 1994,
after his best year ever in business, he came down with the flu. As he tried to work through it he was hit with an illness whose severity he could hardly have imagined. Two years later his business was gone, he was on disability and he had founded the Vermont CFIDS Association. In 2005 he published an autobiography “We’re Not in Kansas Anymore”.
In this interview we talk about his experiences with ME/CFS, his
monumental fights with the insurance industry, the group he founded and more.

You can find the book review and interview at

Upcoming interviews include one with RESCIND founder Tom Hennessey, a two part interview with Ken Friedman, researcher, advocate and father of a ME/CFS patient and more. Also upcoming is the Phoenix Rising Researcher/Research Group of the Year (A Surprise!) and a overreview of last years research.

A special thank you to Rich Carson and Prohealth. Rich Carson through Prohealth has been quietly donating to ME/CFS organizations and efforts for many years and they recently made a donation to Phoenix Rising. Thanks for your support!

As you have probably noticed some sections of Phoenix Rising (main
headings, treatment section, newsletter section) now contain Google Ads. They are simply what they appear to be – an attempt, after six years of not working – to make at least some income. Unless they more or less fail in that regard – which they may! – they will likely be a permanent feature of Phoenix Rising.

Happy reading,

Yours truly,


FMS Global News

Fibrohugs Support

Tenderpoints Newsletter


About FMS Global News

Folllowing Rick Usher's death in December 2008, at his request in September of that year, I had agreed, as his principal contributor and an experienced journalist, to run the FMS Global News service due to his heavy commitments to music and raising research funds through this avenue. Following his sad and sudden death I hope to continue his work as he would have wished.
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