by Jeanne Hambleton
This is an urgent appeal to all UK-ers and ex-UK-ers to support the fibromites back home.
As the new E Petition craze gathers momentum here in the UK four FMS petitions have been placed on the No.10 Downing Street website. Most of you will know I am always bleating on about writing to your MP about FMS so I must congratulate those responsible. I am delighted to see four separate fibromites have put their names up as creators to bring fibromyalgia to the attention of the Prime Minister, the Government and the public. Details of the petitions to be signed and how to access them on the Internet are below.
The No. 10 site, which was set up last November, allows us to create a petition. In the first week the site apparently had over 1,000 petitions. Described as a very busy site, it is claimed that as at to mid-February there were over 3,381 active petitions available for signing with over 2,555,972 signatures.The new service [http://petitions.pm.gov.uk] is designed to offer a modern alternative to the days when folks travelled to London and knocked on the door of No.10 to hand in a petition.
Of course most of us fail to take into account that we are releasing our emails to yet another Government database but that is another story. I guess we can always change our email address – there are so many free ones available these days. The Government believes the E-petitions have provided the public with an “innovation way” of getting in touch with the Prime Minister’s office and the Government. Eventually we do expect some ministerial input – we hope.
Although all petitions must begin, “We, the undersigned, petition the Prime Minister to…”
the question in my mind is, will Tony Blair actually read them or even hear about them? I imagine some civil servants will be responsible for dealing with the petitions, and either way with the opportunity available to make a noise in the ‘corridors of power’, it is a chance we should not miss. When you log on you can even “step inside No.10” and see a film about Tony Blair – after you have signed the petitions please.
Get your relatives and email contacts to sign too. You do not have to have FMS to sign the petition. It took me less than five minutes to do all four petitions. All you need is your name, email address, postal address, which, it states, remains private, and a confirmation email arrives for you to send back as the official signature. There are no medical questions. These E-petitions for FMS need our support to raise awareness.
THE E-PETITIONS TO SIGN
http://petitions.pm.gov.uk/fibromyalgia/ Created by Holly Fraser of Diagnose Support, this petition had just 143 signatures. Here, here! We definitely need more signatures for this.
We the undersigned petition the Prime Minister to ensure that doctors are educated about fibromyalgia and myofascial pain.
http://petitions.pm.gov.uk/Invisibleillness/ Created by Georgina Bass. This had 192 signatures on 3rd March. Yes I will vote for that – sign up please.We the undersigned petition the Prime Minister to ensure those of us with invisible disabilities and illnesses are given a fair deal.
http://petitions.pm.gov.uk/FMSCLINICS/ Created by Helen Rainbow, a member of the Surrey & Sussex Support Group. This has 205 signatures – a good idea. We should support.
We the undersigned petition the Prime Minister to improve clinical diagnosis, medication and provide clinics for fibromyalgia patients
http://petitions.pm.gov.uk/FMS-Research/ Another created by Deborah Jenkins, this one had 173 signatures. This needs support too.
We the undersigned petition the Prime Minister to Finance Medical Research in the UK for the condition Fibromyalgia Syndrome. As a sufferer of F.M.S I would appreciate that the UK research this condition. There are similarities between this and M.E especially the sleep disorder side of things but it goes much further then this. A better understanding of the condition is needed and a goal should be set to try and help sufferers and bring them together to express how it affects their everyday living.
I believe all these petitions are worth signing. If you do nothing else for World Fibromyalgia Awareness on May 12th tell your friends and ask them to support you and sign all the petitions.
If you are not on the Internet write to Prime Minister Tony Blair (E-petitions) 10, Downing Street, London, SW1A 2AA, UK, explaining you have no access to the website and that you wish your name to be added to all four petitions. Remember to quote the titles of all four petitions. The PM’s website is http://www.pm.gov.uk/ Make this May 12th one to remember.
Jeanne Hambleton © 2007