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PIERRE FABRE MEDICAMENT AND FOREST LABORATORIES TO COLLABORATE ON DEVELOPMENT AND COMMERCIALIZATION

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From the Desk of Jeanne Hambleton – courtesy PR-Canada.Net. 

 (http://pr-canada.net/index.php?option=com_content&task=view&id=71522&Itemid=61)

Saturday, 27 December 2008
Forest Laboratories, Inc. and Pierre Fabre Medicament today announced that they have entered into a definitive collaboration agreement to develop and commercialize F2695 in the United States and Canada. F2695 is a proprietary selective norepinephrine and serotonin reuptake inhibitor that is being developed by Pierre Fabre for the treatment of depression and other central nervous system disorders.
  

Under the terms of the agreement, Forest will make an upfront payment to Pierre Fabre of $75 million and will pay future, undisclosed milestone payments. In addition, Pierre Fabre will receive royalty payments based on F2695 sales. Forest will assume responsibility for the clinical development and commercialization of F2695 in the United States and Canada, while Pierre Fabre will fund all preclinical development and drug substance manufacturing activities worldwide.

“We are pleased to expand our relationship with Pierre Fabre to include this collaboration on the development of F2695 for the treatment of depression. Pierre Fabre has been an outstanding partner for Forest since we commenced our alliance in 2004,” commented Howard Solomon, Chairman and Chief Executive Officer of Forest. “We are highly encouraged by the strong clinical antidepressant activity and good tolerability exhibited by F2695 in the recently completed placebo-controlled, double-blind Phase II study. We look forward to initiating Phase III studies with F2695 next year. F2695 is the second late-stage product candidate we have licensed this quarter, underscoring our commitment to further building our pipeline and bringing novel therapeutics to the market.”

“Pierre Fabre is looking forward to working with Forest on this exciting product opportunity,” said Jean-Pierre Garnier, Chief Executive Officer of Pierre Fabre Medicament. “Forest has an excellent record of developing and commercializing products for the treatment of depression and we are happy to extend our existing partnership to include F2695.”

In a recently completed European placebo-controlled, double-blind Phase II study of F2695 in over 550 patients with major depressive disorder, the compound demonstrated statistically significant improvement compared to placebo (p<0.0001) on the primary endpoint, change from baseline in total score on the Montgomery-Asberg Depression Rating Scale (“MADRS”). Statistically significant improvement for F2695 compared to placebo was also demonstrated using the change from baseline in the Hamilton Depression Rating Scale (“HAMD-17″) and in response and remission rates using both the MADRS and HAMD-17. In addition, F2695 demonstrated improvement compared to placebo within two weeks after treatment initiation.

About F2695

F2695 is an isomer of milnacipran and is protected by a method of use patent that extends through June 2023. F2695 exerts its effects by selectively inhibiting the reuptake of both norepinephrine and serotonin, two neurotransmitters known to play an essential role in regulating mood. Forest, in partnership with Cypress Bioscience, Inc. and Pierre Fabre, is currently developing milnacipran; a selective serotonin and norepinephrine dual reuptake inhibitor, for the management of fibromyalgia. The New Drug Application is under FDA review and we continue to plan for a first quarter 2009 product launch meeting

About Pierre Fabre Medicament

The Pierre Fabre Group, the second largest independent laboratory in France, employs some 10,000 people, and achieved a turnover of 1.7 billion euros in 2007. The lines of business are ethical medicine, family health but also in dermo-cosmetic products with several brands: Avene, Ducray, A-Derma, Galenic, Klorane and Rene Furterer and dermo-cosmetics. Pierre Fabre Medicament, the pharmaceutical branch of the Pierre Fabre Group, made Research and Development its core business and the key to its future. With 1,400 employees dedicated to R&D, Pierre Fabre Medicament has invested 30% of its annual sales to R&D during 2008, in five major therapeutic areas in terms of public health: oncology (the priority R&D area of Pierre Fabre Medicament, with 50% of all R&D expenses), psychiatry, urology, cardio-vascular, rheumatology. To learn more about Pierre Fabre, visit http://www.pierre-fabre.com.

About Forest Laboratories

Forest Laboratories is a U.S.-based pharmaceutical company with a long track record of building partnerships and developing and marketing products that make a positive difference in people’s lives. In addition to its well-established franchises in therapeutic areas of the central nervous and cardiovascular systems, Forest’s current pipeline includes product candidates in all stages of development and across a wide range of therapeutic areas. The company is headquartered in New York, NY. To learn more about Forest Laboratories, visit http://www.FRX.com.

Except for the historical information contained herein, this release contains forward-looking statements within the meaning of the Private Securities Litigation Reform Act of 1995. These statements involve a number of risks and uncertainties, including the difficulty of predicting FDA approvals, the acceptance and demand for new pharmaceutical products, the impact of competitive products and pricing, the timely development and launch of new products, and the risk factors listed from time to time in Forest Laboratories’ Annual Report on Form 10-K, Quarterly Report on Form 10-Q, and any subsequent SEC filings. 

 

A LETTER TO ‘NORMALS’

by Jeanne Hambleton © 2008
NFA Leader Against Pain-Advocate

How many times do you feel guilty when you watch your family do jobs which you used to do without thinking about it? What is your reaction to that barbed comment, “No, you sit still. You said you don’t feel well!”

Yes me too – I want so much to do what I have always done but these days I am forced to look at the jobs and think maybe tomorrow I will feel better. In fact (tomorrow) Mother Mañana has become my middle name

I read an article about one fibromites who made the front page of her local newspaper because she told them she was dying to do her own washing up? Certainly a good angle for a story and it raised quite a bit of awareness, but that nevertheless does not stop you feeling isolated with your invisible disability.

Come to think of it, this could be a wonderful story for the local paper for International Fibromyalgia Awareness Day on May 12. Just imagine if all the local newspapers carried the story and talked about raising awareness, it is such a silly story we would even make television.

But I do try to look on the bright side of any situation and must admit I have met such pointed remarks with the comment, “Well, you know I had to drop out of the London Marathon and was very disappointed I could not do the skydive.” This usually brings a smile and clears the air. It helps if no offence was intended.

But recently someone sent me a copy of a letter written by Ronald J. Waller on behalf of his wife, for the website, www.fibrohugs.com, where it has been viewed almost 29,000 times.

It is a poignant letter that supports the need for understanding for fibromites and leaves the reader in no doubt that the writer is certainly suffering and under pressure.

The composer of this letter is Ronald J. Waller, who is a published writer and has his own website http://rjswritingloft.com.

He told me, “After watching my best friend, my wife, suffer from fibromyalgia I felt compelled to write, inform and continue to learn more about this demon that not only invades Carolyn’s life but also has affected all who are close to her.”

My thanks to Ronald for sharing this with us and thanks to Fibrohugs for allowing us to publish this.

LETTER TO NORMALS

Hello Family, friends and anyone wishing to know me,

Allow me to begin by thanking you for taking the time out of your day to spend time with me and to get to know me better. A person’s time is their most valuable asset and yours is appreciated.

I want to talk to you about Fibromyalgia Syndrome (FMS) and Chronic Myofascial Pain Syndrome (MPS). Many have never heard of these conditions and for those who have, many are mis-informed. Because of this judgements are made that may be incorrect…….So I ask you to keep an open mind as I try to explain who I am and how FMS/MPS has assaulted not only my life but those whom I love as well.

You see, I suffer from a disease that you cannot see – a disease that there is no cure for and that keeps the medical community baffled at how to treat and battle this demon, whose attacks are relentless. My pain works silently, stealing my joy and replacing it with tears. On the outside we look alike you and I. You will not see my scars as you would a person who had suffered a car crash. You will not see my pain in the way you would a person undergoing chemo for cancer. However, my pain is just as real and just as debilitating. In many ways my pain may be more destructive because people cannot see it and do not understand……..Please do not get angry at my seemingly lack of interest in doing things. I punish myself enough I assure you. My tears are shed many times when no-one is around. My embarrassment is covered by a joke or laughter, but inside I want to die……..

Most of my ‘friends’ are gone, even members of my own family do not understand. I have been accused of ‘playing games’ for sympathy. I have been called unreliable because I am forced to cancel plans I made at the last minute. This is because the burning and pain in my legs or arms or both is so intense I cannot put my clothes on. I am left in my tears as I miss out on yet another activity I used to love and once participated in with enthusiasm.

I feel like a child at times……just the other day I put the sour cream I had bought in the pantry instead of in the fridge. By the time I noticed it, it had spoiled. When I talk to people, many times I lose my train of thought in mid sentence or forget the simplest word needed to explain or describe something. Please try to understand how it feels to have another go behind me in my home to make sure the stove is off after I cook an occasional meal. Please try to understand how it feels to ‘lose’ the laundry, only to find it in the stove instead of the dryer. As I try to maintain my dignity the demon assaults me at every turn.. Please try to understand…………

Sleep, when I do get some, is restless. I wake often because the pain of the sheets on my legs is unbearable or because I twitch uncontrollably. I walk through many of my days in a daze with the fibro-fog laughing at me as I stumble and grasp for clarity.

Just because I can do a thing one day, that does not mean I will be able to do the same thing the next day or next week. I may be able to take that walk after dinner on a warm July evening. The next day or even in the next hour I may not be able to walk to the fridge to get a cold drink because my muscles have begun to cramp and lock up or spasm uncontrollably. There are those who say ’but you did that yesterday!’ ’What is your problem today?’ The hurt I experience at those words scars me so deeply that I have let my family down again, and still they do not understand……………..

On the brighter side I want you to know that I still have my sense of humour. If you take the time to spend with me you will see that. I love to tell that joke to make another’s face light up and smile at my wit. I love my kids and grandkids and shine when they give me a hug or ask me to fix their favourite toy. I am fun to be with if you will spend time with me in my own playing field. Is this too much to ask? I love you and want nothing more than to be a part of your life. I have found that I can be a strong friend in many ways. Do you have a dream? I am your friend, your supporter and many times I will be the one to do research for your latest project. Many times I will be your biggest fan and the world will know how proud I am at your accomplishments and how honoured I am to have you in my life.

So you see, you and I are not that much different. I too have hopes, dreams, goals…..and this demon….Do you have an unseen demon that assaults you and no one else can see? Have you had to fight a fight that crushes you and brings you to your knees? I will be by your side, win or lose, I promise you that. I will be there in ways that I can. I will give all I can as I can. Please understand that I am in such a fight myself and I know that I have little hope of a cure or effective treatment, at least right now anyway…….Please understand……..

Thank you for spending your time with me today. I hope we can work through this thing, you and I…..I just need you to just try to understand that I am just like you……………………

For a small insight into the constant pain of a fibromyalgic lift your arm and squeeze the muscle just below your neck on the top of your shoulder, hard enough until it is uncomfortable. Then squeeze a little more and hold it for a few minutes if you can stand it. That is the pain we feel from the roots of our hair to the tips of our toes……………………..

Thank you for taking the time to read this, sorry if the pain experiment hurt’s, it does!! xxxxxxxx

Copyright of Ronald J. Waller and www.fibrohugs.com

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A THOUGHT PIECE

by Jeanne Hambleton © 2008
NFA Leader Against Pain-Advocate

Grab a cup of coffee, sit comfortably and let us begin. The papers here in the UK this weekend have been full of justice being handed out contrary to British law by groups of Muslim elders sitting judgment on those with the same religious beliefs, in a redundant public house, someone’s front parlour or elsewhere.

Whatever your feelings may be on this I think you will have to agree with me that in this country we are in a bit of a mess it seems. The Government does not seem to know if it is on it’s head or it’s heels. I am saddened when I read about the stabbings of schoolboys, the stoning and battering of good citizens trying to protect their own property, the problems from the binge drinking, increased teenage pregnancies, the turmoil faced by broken families after quickie divorces when children need a mother and father, and the general behaviour today. My parents never talked about divorce. I doubt they could have afforded to divorce. My Dad was too busy earning a small wage to put food on the table. They had their ups and downs but separate – never. They married for better or worse. As I did. Yes I am still on my first marriage after 3 children and two grandchildren, and proud of it. How have we come to this sickness of people thinking only of themselves without considering the turmoil they leave behind them and how others have to live with their thoughtlessness? .

Yes I know I can hear you say – here she goes again – on about the good old days. I seem to be on the Soap Box again – sorry about that. But you must agree we (we those of us of a certain age) did respect our parents, grandparents, elders, teachers, and of course the ‘Bobby’ on the beat. Cheek him, and he would cuff you with his firm cape. Today the children seem fearless. As one paper described them, they have become ‘feral’ groups – wild – looking for kicks at the expense of other people.

But what about us grown ups, are we any better? Would you give up your seat on the crowded 5.30pm train to a pregnant woman – or would you think she should not be travelling at rush hour? Maybe you would offer your seat on a crowded bus to a young mother and child, a granddad or someone disabled? Do you stop and help someone who has fallen over in the street or dropped all their shopping? Or do you hurry by in case it is a trick to rob you? Does your conscience encourage you to throw a 50p coin in the hat of some poor homeless soul, so as to make you feel good?

Is it not time we took stock of the way we live our lives? This could be your grandmother, your pregnant sister, or even your child who was born disabled and it is not his fault, struggling to cope without any offers of help?

I believe the trouble today is we do not have time to stop and think about anything other than ourselves, our problems, our mortgage, career, wife and children.

While I am not a church-goer, I do believe there is something else after death. I do consider I am a Christian and I would stop and help an old lady pick up her shopping or offer comfort if she fell. I was offered the same comfort when I fell.

This does make me remember something I learned at school which for no particular reason has stuck in my mind. “Do unto others as you would have them do unto you!” I seem to think I heard this in RE (Religious Education).

When an email arrived on my desktop about a mother of three children and two unwashed smelly men, I felt the moral of the story was so strong that I should share it with others. I am told it is a true story – I really hope it is.

BREAKFAST AT MACDONALDS

I am a mother of three (ages 14, 12, 3) and have recently completed my college
degree. The last class I had to take was Sociology.

The teacher was absolutely inspiring with the qualities that I wish every human being had been graced with.

Her last project of the term was called, ‘Smile.’ The class was asked to go out and smile at three people and document their reactions. I am a very friendly person and always smile at everyone and say hello anyway. So, I thought this would be a piece of cake, literally.

Soon after we were assigned the project, my husband, youngest son, and I went out to McDonald’s one crisp March morning. It was just our way of sharing special playtime with our son. We were standing in line, waiting to be served, when all of a sudden everyone around us began to back away, and then even my husband did.

I did not move an inch… an overwhelming feeling of panic welled up inside of me as I turned to see why they had moved. As I turned around I smelled a horrible ‘dirty body’ smell, and there standing behind me were two poor homeless men.

As I looked down at the short gentleman, close to me, he was ‘smiling’. His beautiful sky blue eyes were full of light as he searched for acceptance.

He said, ‘Good day,’ as he counted the few coins he had been clutching. The second man fumbled with his hands as he stood behind his friend. I realized the second man was mentally challenged and the blue-eyed gentleman was his salvation. I held my tears as I stood there with them.

The young lady at the counter asked him what they wanted. He said, ‘Coffee is all Miss’ because that was all they could afford. (If they wanted to sit in the restaurant and warm up, they had to buy something. He just wanted to be warm).

Then I really felt it – the compulsion was so great I almost reached out and embraced the little man with the blue eyes.

That is when I noticed all eyes in the restaurant were set on me, judging my every action. I smiled and asked the young lady behind the counter to give me two more
breakfast meals on a separate tray.

I then walked around the corner to the table that the men had chosen as a resting spot. I put the tray on the table and laid my hand on the blue-eyed gentleman’s cold hand.

He looked up at me, with tears in his eyes, and said, ‘Thank you.’

I started to cry as I walked away to join my husband and son. When I sat down my husband smiled at me and said, ‘That is why God gave you to me, Honey, to give me hope.’

We held hands for a moment and at that time, we knew that only because of the Grace that we had been given were we able to give. We are not churchgoers, but we are believers.

I returned to college, on the last evening of class, with this story in hand. I turned in ‘my project’ and the instructor read it. Then she looked up at me and said, ‘Can I share this?’ I slowly nodded as she got the attention of the class.

She began to read and that is when I knew that we as human beings and share this need to heal people and to be healed. In my own way I had touched the people at McDonald’s, my son, instructor, and every soul that shared the classroom on the last night I spent as a college student.

I graduated with one of the biggest lessons I would ever learn – unconditional acceptance. Much love and compassion is sent to each and every person who may read this and learn how to love people and use things – not love things and use people.

She added an angel wrote many people will walk in and out of your life, but only true friends will leave footprints in your heart. To handle yourself, use your head. To handle others, use your heart. God gives every bird it’s food, but He does not throw it into its nest.

So the moral of this story is – we have got to work at it. Think about if you were in their situation? Consider if you were a mother with a small child carrying groceries and struggling and standing on a crowded bus. I will leave you with this thought – there must be more to life than thinking about ourselves.

I would love to hear your comments! What do you think? How can we change this ‘sickness’?
Talk soon. Jeanne.

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Disability and quality of life in patients with fibromyalgia.

Verbunt JA, Pernot DH, Smeets RJ.

ABSTRACT:

BACKGROUND: Patients with fibromyalgia often feel disabled in the performance of daily activities. Psychological factors seem to play a pronounced disabling role in fibromyalgia. The objectives of the study are: Firstly, to investigate contributing factors for disability in fibromyalgia. Secondly, to study psychological distress in patients with fibromyalgia as compared to other nonspecific pain syndromes. And finally, to explore the impact of fibromyalgia on a patient’s quality of life.

METHODS: In this cross sectional study, explaining factors for disability were studied based on a regression analysis with gender, mental health, physical and social functioning as independent variables. For the assessment of disability in fibromyalgia the FIQ was used. The levels of psychological distress in patients with fibromyalgia, Complex Regional Pain Syndrome (CRPS) and chronic low back pain (CLBP) were compared based on scores on the Symptom Checklist (SCL90). Quality of life of patients with fibromyalgia was compared with scores (SF36) of both patients with fibromyalgia and other health conditions as derived from the literature. RESULTS: Disability in fibromyalgia seemed best explained by a patients mental health condition (beta=-0.360 p=0.02). The level of psychological distress was higher in patients with fibromyalgia as compared to patients with CRPS or CLBP (p<0.01). The impact of fibromyalgia on quality of life appeared to be high as compared to the impact of other health conditions.

CONCLUSIONS: Patients with fibromyalgia report a considerable impact on their quality of life and their perceived disability level seems influenced by their mental health condition. In comparison with patients with other pain conditions psychological distress is higher.

PMID: 18211701 [PubMed - as supplied by publisher]

1: Health Qual Life Outcomes. 2008 Jan 22;6(1):8 [Epub ahead of print]

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FIBROMYALGIA – IS IT REAL?

by Jeanne Hambleton © 2008
NFA Leader Against Pain-Advocate

An article, suggesting that fibromyalgia is not real, has appeared in the New York Times in the last few days, has certainly opened a can of worms among the FM community. The story, written by Alex Berenson and called ‘Drug Approved. Is Disease Real?’ refers to the approval of Pfizer’s Lyrica as the first FDA recognised fibromyalgia drug and suggests the pain we feel is not caused by a disease.

Everyone but everyone is getting hot under the collar about these suggestions, so why shouldn’t I? I have sent my comments to the Editor of the New York Times on our behalf but this is not quite as good as some comments I have read so far. But then I am not an MD who has been working in rheumatology and with fibromyalgia since the 1980s and possibly before. Anyway I thought we were all suffering from a syndrome not a disease – that is as it maybe – all I know is I am sick of the pain, I am NOT imagining this and I have been diagnosed.

The article quoting various sources suggests that fibromyalgia does not exist and suggests FM is a physical response to depression, anxiety, stress and social anxiety. Just to put the cat among the pigeons one MD is quoted as saying the ‘disease does not exist’ and suggests that those who take the new drug from Pfizer (Lyrica) and other drugs do not need the medication. Wow…

Dr Rodger Murphee, a well known Internet authority on fibromyalgia, in his email newsletter concerning the controversy refers to the article’s comments that the
worldwide sales of Lyrica reached $1.8 billion in 2007, up 50 percent from 2006. It is believed in 2008 this will rise an additional 30 percent helped by advertising.  It is claimed Pfizer spent $46 million on advertising Lyrica in nine months in 2007.

Dr. Murphee suggests, “Sadly, The New York Times and other print media have elected to take a different slant. Instead of helping dispel the myth that those with fibromyalgia are crazy, lazy, or depressed, they have elected to focus on the minority of doctors who think fibromyalgia is not real. I encourage you to write The New York Times and let them know that fibromyalgia is real and is only made worse by arrogant doctors who help perpetuate the idea that the syndrome is psychosomatic in nature.”
He also states that Lyrica does not suit everyone and there can be side effects. So yes, please everyone with fibromyalgia email the New York Times. No excuses please. The address and link to the article are shown below.
To read the article link to http://www.nytimes.com/2008/01/14/health/14pain.htmlTo send your feed back on health try http://www.nytimes.com/gst/emailus.htmlTo add to those comments a Canadian physiotherapist, Iris Wevermann RPT, sent a copy of this letter with the comment “I love it!” This apparently appeared in the New York Times following the controversial article. Co-written by a well known FM authority this comes from Robert Bennett MD, FRCP, FACP, Professor of Medicine and Nursing and Kim Dupree Jones PhD, FNP Associate Professor of Nursing.

“Yesterday’s New York Times article, “Drug Approved. Is Disease Real?” has created quite a stir with both patients whose lives are impacted by fibromyalgia, and the health care community who must diagnose and treat this common disorder.
 
Here at Oregon Health & Science University (OHSU) we have a quarter century of experience in researching and treating fibromyalgia. Yesterday’s article was a poorly informed opinion piece that reminded us of the articles when we and other researchers first started on the quest to understand this disorder in the 1980s.  It, unfortunately, ignored much of the scientific progress that has resulted from this research and the current widespread acceptance of fibromyalgia as a common, well-defined chronic pain disorder.
 
For instance fibromyalgia is recognized as a diagnosable disorder by the National Institutes of Health, the American Medical Association, the American College of Rheumatology and the Social Security Administration. The American Boards of Internal Medicine has fibromyalgia on the curriculum for physicians seeking Board Certification.  

Epidemiological studies worldwide provide a similar fibromyalgia prevalence of 2-7%, some 10 million people in the US suffer the debilitating effects of fibromyalgia. Over 4,000 scientific and clinical papers have been published on this topic since 1980.
 
The sub-title “some doctors dispute the existence of a pain” is especially duplicitous. One does not have to be a doctor to know that pain is “real”, even if it doesn’t show up in an imaging study or blood test. Pain is always a subjective sensation, whatever its cause. Do those doctors who question the reality of pain without a diagnostic test also dismiss the reality of headaches or menstrual cramps? 
 
There is now undisputable scientific evidence that fibromyalgia patients have a functional disorder of their central nervous system in which pain and other sensations are amplified before reaching the conscious areas of the brain. The quoted opinion that fibromyalgia patients’ problem is “an inability to adapt to the vicissitudes of life”, is a generalization that has no scientific basis. All chronic pain disorders take a psychological toll as well as a physical one; those who adapt well fare better in life, but still have pain.  
 
Just like diabetes and high blood pressure there is no cure for fibromyalgia at this time, but there are some newer treatments, such as Lyrica, Cymbalta and milnacipran, that provide scientifically validated improvements in pain and other symptoms. Castigating the pharmaceutical companies who have spent millions in developing these drugs, because they “hope to make a profit”, is naïve and disingenuous.
 
The symptoms of fibromyalgia are common and real—and it is for this very reason that information to the public should be offering hope, not doubts and questions.

An email to me from Dominie Bush who is responsible for a very comprehensive fibromyalgia website and newsletters, reported a comment from one of her readers on the New York Times article. This referred to the AOL news site inviting people to vote on this issue.
“Just got this from a reader!  Click on the link and VOTE on “IS FIBROMYALGIA REAL?” - Dominie http://www.fms-help.com
http://news.aol.com/story/_a/drug-approved-is-disease-real/20080114101709990001?ncid=NWS00010000000001
The reader said, “Drug Approved. Is Disease Real? – AOL News  – Just passing this along and wondering when they are gonna find something to help with this horrible thing called fibromyalgia.  These people make me sick.  What did thousands of people say?  Let’s all say we have the same thing and invent something.  Makes me so mad that no one listens.  The only people that understand are the people living with this.”
The AOL News website invited readers to consider if they believe fibromyalgia exists by answering, ‘yes’, ‘no’ or ‘I am not sure’. When I voted along with 10,449 others, the polls showed a majority of those voting confirmed that FM does it exist. The poll indicated 57% – 41,039 – said yes; 24% – 17,304 – said no; and 19% – 14,093 – said they were not sure.
The poll also revealed 58,017 – 85% confirmed they knew someone who had been diagnosed with FM and just 15% – 68,467 said they did not know anyone with fibromyalgia. That says quite a lot for awareness!

Going back to the article in the Times by Alex Berenson it is reported that the vice president of Pfizer, a psychiatrist Dr. Steve Romano said it was expected that Lyrica would be prescribed by doctors a neurologists. The Doctor suggests if medications are well tolerated this dispels reluctance on the part of the prescriber.

He suggests that the new drugs from Lilly and Forest that are being considered for fibromyalgia were developed as antidepressants. Both drugs work by increasing the levels of serotonin and norepinephrine, brain transmitters that affect mood. Cymbalta from Lilly is currently available in the US but milnacipran is not available but can be purchased in other countries.

Alex Berenson writes that the manufacturers of Cymbalta claim it is effective with fibromyalgia pain although it is an antidepressant. Dr Amy Chappell at Lilly says that FM patients report pain relief even if they are not depressed.

Dr. Chappell suggests the effectiveness of all three drugs – Lyrica, Cymbalta and Milnacipran are all similar and it is thought that some of the drugs may be used as a combination.

As a passing thought among all this controversy, it has been pointed out that there is no proven prevention for this disorder. However, over the years, the treatment and management of the disease has improved.

As for my six pennyworths I wrote to the New York Times and said fibromyalgia stole my life when I would never walk again. It took a year to be diagnosed – privately I might add. Since that time I have spent 5 year researching this syndrome and there is no doubt IT IS REAL. Stress and trauma might be triggers but brain imagining has proved our brains are ‘wired differently’ and it is in the genes. That is REAL.

When people say to me “Fibro what?” I could scream. The problem is lack of awareness. Thanks to the New York Times for highlighting the discussions and problems surrounding this invisible disability (we look so well) and I was always taught as a news reporter that any publicity (good or bad) is good publicity. So do not despair all you fibromites, we are raising awareness albeit there is a difference of opinion. At least people are now reading about fibromyalgia.

We KNOW what it is like to suffer with fibromyalgia, don’t we? I am writing a self-help book on fibromyalgia. Would I waste my time if I thought FM was not REAL? The answer is NO. What we need is for some celebrities to ‘come out’ and admit they have fibromyalgia! The publicity would help raise awareness. Why isn’t Oprah in this debate? Please write to me. I would love to hear your views about real fibromyalgia for the book. jeannehambleton@mac.com

[Perceived pain and weather changes in rheumatic patients]

[Article in Portuguese]

Miranda LC, Parente M, Silva C, Clemente-Coelho P, Santos H, Cortes S, Medeiros D, Ribeiro JS, Barcelos F, Sousa M, Miguel C, Figueiredo R, Mediavilla M, Simões E, Silva M, Patto JV, Madeira H, Ferreira J, Micaelo M, Leitão R, Las V, Faustino A, Teixeira A.
Instituto Português de Reumatologia. luis.miranda@ipr.pt

INTRODUCTION: Rheumatic patients with chronic pain describe in a vivid way the influence of climate on pain and disease activity. Several studies seem to confirm this association.

OBJECTIVES: To evaluate and compare in a population of rheumatic patients the perceived influence of weather changes on pain and disease activity.

METHODS: This is a retrospective cross-sectional study. For three weeks an assisted self-reported questionnaire with nine dimensions and a VAS pain scale was performed on consecutive out-patients in our clinic.

RESULTS: 955 patients 787 female 168 male mean age 57.9 years with several rheumatologic diagnosis were evaluated. Overall 70 of the patients believed that the weather influenced their disease and 40 believed that the influence was high. Morning stiffness was influenced in 54 high influenced in 34 . Autumn and Winter were the most influential periods as well as humidity 67 and low temperatures 59 .

CONCLUSION: In our study as well as in literature we found that a high percentage of patients 70 perceived that weather conditions influenced their pain and disease. Fibromyalgia patients seemed to be strongly influenced by weather changes. Our study confirms that patients perception on the influence of climate on pain and therefore their disease is an important clinical factor and it should be considered when evaluating rheumatic patients.

PMID: 18159202 [PubMed - in process]

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Tenderpoints Newsletter

CONGO’S BILL AND THE RACE AGAINST TIME

by Jeanne Hambleton  © 2008
NFA Leader Against Pain-Advocate  

A committee of the New Jersey Senate has considered a new bill called Congo’s Law and there are hopes that Congo, the German Shepherd dog, will no longer be under sentence of death.

See original story: Congo gets world wide support

Congo was put on “death row” last June as a vicious dog after protecting his mistress, a female dog and three puppies, from an alleged attack with rake by a gardening contractor. When news of her fate reached the Internet animal activists and dog lovers all over the world signed petitions and sent emails to the Judge in Princeton, home of Congo, to save the dog’s life.

This week thanks to a friend, Anne Soden, who lives in Princeton and took part in one of the demonstrations to save Congo, I can bring you news that an American Assemblyman called Neil M Cohen from the New Jersey Senate has proposed a Bill to save the life of Congo, the German Shepherd dog sentenced to death. Thanks Anne.

Neil Cohen is quoted as saying,”Congo’s case underscores the need for the state to modernize the law that deals with dog attacks so it is fair for the owners and the animals.”

Congo’s Bill would revise state animal control law provisions that are alleged to be archaic and barbaric, by making it more difficult to label a dog vicious or to put an animal down.

But a USA website (http://abbyK9.blogspot.com) which shows a picture of two of the James children with Congo, adds a cautious note to say, “Please note that Congo being returned to his family is only temporary while the case goes through the appeal. Congo could still be put to sleep for protecting her family. So please, keep contacting the governor’s office to have this matter put to rest once and for all. The calls and emails are helping!” Details of who and where to write or email appear later in this story.

NEW JERSEY SENATE

In December Congo’s Bill, that would immediately change the state’s vicious dog laws, made its first passage through the Senate.

The New Jersey Assemblyman Neil Cohen, who took this action, is an avid defender of the rights of animals and has sponsored several measures to ensure the humane treatment of animals. He has met Congo and his owners, the James family, at their home in Princeton to raise awareness of his legislation and the dog’s potential fate. Neil Cohen says that under current law the only defense for a dog declared vicious is if the dog has been provoked and acted in defense to protect itself, its offspring, its owner or a family member of the owner.

“The nature of a dog is to protect those around them,” said the Assemblyman. “It’s outrageous that Congo may have been provoked into attacking and this fact is being ignored by authorities.”

A lawyer for Congo’s owners has argued that Congo was provoked when the dog mauled a landscaper on June 5 outside a home in Princeton Township. Neil Cohen’s bill (A-4597) will clarify and revise the current vicious dog law to make it more equitable.

The bill would take into consideration provocation by treating a dog provoked to attack differently than an unprovoked dog that caused bodily injury to a person or domestic animal during an attack.

The Assemblyman said the bill would define striking, grabbing, poking and prodding as threatening actions and behaviors that could incite a dog to defend itself, its offspring or its owner or the owner’s family. The legislation would raise the bar for declaring a dog as vicious. It would require a dog to be found vicious beyond a reasonable doubt — the same standard used for humans charged with a crime. The measure also would give municipal courts an alternative to humanely destroying a vicious dog by giving the owner the option to comply with precautions for keeping a potentially dangerous dog.

During the disposition and appeals process, the bill would allow an owner to keep their dog as long as they complied with current law’s precautions for keeping a potentially dangerous dog. Precautions for owners keeping a dog deemed potentially dangerous include posting signs on their property and minimizing a dog’s potential threat to people and other animals. The bill also would allow an owner and owner’s family to visit their dog during times when their dog might be impounded. The bill would establish a three-month statute of limitations for animal control officer to seize and impound alleged vicious or potentially dangerous dogs.

Neil Cohen said the vicious dog law has not been amended since 1994 and it is long overdue for an update. He hoped his legislation would be fast tracked into law to save the life of Congo.

Congo was ruled vicious by Princeton Township Municipal Judge Russell Annich, Jr., who also ordered that the dog be put down. The judge’s decision has since been stayed and a state Superior Court Judge has allowed the dog to return to his home, pending appeal, with numerous restrictions, including that he is muzzled and kept in a fenced area.

The fate of Congo created a public debate that has lead to more telephone calls, emails, letters and faxes to Governor Jon S. Corzine’s office than any other issue since the governor took office.

The Bill was carried by a vote of 5 to 0. It now heads to the Assembly Speaker who may or may not decide to post it for a vote by the full Assembly.

ON LINE SUPPORT

Broadcaster Warren Eckstein from Santa Monica, California, an internationally known pet and animal expert, has been carrying news of Congo’s Bill on his website.

On December 19 Warren wrote that the New Jersey Assembly Agriculture and Natural Resources Committee today released legislation Assembly Deputy Speaker Neil M. Cohen crafted that would immediately change the state’s vicious dog laws.

It was also reported – you will be pleased to hear – from Warren’s website that Congo and his partner Lucia are so happy to be back together.

Elizabeth James on Warren’s website wrote, “I think the appeal could take months but we are optimistic. God willing, New Jersey Assemblyman Neil Cohen’s proposal of Congo’s Law will go through and that will be the first line of defense. We are still receiving mail and email from well wishers and supporters all around the globe! Thank you for all the support and we will keep you posted as we progress.”

On another local website for Asbury Park Press, APP.com for Jersey for comments, blogs and shares, Tom Baldwin of Gannett State Bureau reported Assemblyman Neil Cohen, a professed dog-lover, is quoted as saying under this bill Congo gets saved and the bill gives municipal judges needed latitude to deal with dog-bite cases.

Tom Baldwin continues and I smiled, “The story connects hot-issue circuitry. Mix the gentility of leafy, enlightened Princeton with the dog-lovers and the immigration debate — the landscaper is reported to have been an illegal from Honduras — and the story quickly won global appeal.
“Locally, not since a whale swam up the Delaware River to freshwater Trenton in April 2005 has an animal story grabbed headlines, aside from some reported coyote attacks and New Jersey’s enduring debate over whether to allow hunters shoot black bears.”
And finally Abby K 9 tells us the way to get Congo’s ruling reversed, hopefully, is to contact New Jersey governor Jim Corzine. His office is taking calls (and counting them) to support overturning the death sentence for Congo the German Shepherd.

The governor’s office can be contacted at Office of the Governor, PO Box 001,Trenton, NJ 08625. Calling is preferred, (609-292-6000) but you can also email them through the website.

http://www.nj.gov/cgi-bin/governor/govmail/govmail_1.pl

Choose “Law & Public Safety” on the drop-down menu and on the next page, choose “Pardons & Clemency”. It only takes a few seconds to call – they are interested in the number of callers, not what you have to say – and it does not take much longer to email. Assemblyman Cohen telephone number is (908) 624-0880.

CONGO’S BILL
The following includes a statement from the Bill outlining the relevant details of Congo’s Bill.

On December 17 Senate Bill No. 3019 (A.4597) was introduced for the 212th Legislature. The synopsis said it revises vicious and potentially dangerous dog law; designated Congo’s Law.

The final Statement in the Act concerning vicious and potentially dangerous dogs and designated as Congo’s Law, and amending and supplementing P.L.1989, c.307.
enacted by the Senate and General Assembly of the State of New Jersey said,

“This bill clarifies and revises several provisions of the State law that address vicious and potentially dangerous dogs.  It is designated as Congo’s Law in recognition of Congo, a dog in Princeton, New Jersey, that was declared a vicious dog and subject to an order to be euthanized when, by many accounts, it was protecting its owner and the owner’s family members when a landscaping crew, against the owner’s instructions, came onto the owner’s property.

“Specifically, the bill defines the terms ‘provoked’ and ‘unprovoked.’  Whether a dog is provoked or not is currently the only defense under the law to prevent a dog from being declared vicious when it is acting in defense of itself, its offspring, its owner, or a family member of its owner.  Also, under current law, if a municipal court declares a dog to be vicious, it must be humanely destroyed.  This bill provides the municipal court an alternative to humanely destroying a dog that is declared vicious.

“Under the bill, the court may, for equitable reasons, choose an alternative to destroying the dog if the alternative is sufficient to protect the public and is at least as protective and restrictive as the precautions required for keeping a potentially dangerous dog.  The bill allows for an owner to keep the dog pending disposition of the case and any appeals if the owner agrees to comply with those precautions.  The precautions include posting certain signs on the property and minimizing the dog’s contact and threat to people and other animals in specific ways. 

“In addition, the bill authorizes the court to modify certain requirements for potentially dangerous dogs, and vicious dogs that remain with their owners, to be reasonable, affordable and appropriate to the owner’s circumstances. The bill further provides for visitation by the owner and the owner’s family during any impoundment that is required.

“Furthermore, the bill raises the burden of proof in most cases for finding a dog to be vicious or potentially dangerous to beyond a reasonable doubt, instead of by clear and convincing evidence.  The municipal burden of proof for demonstrating that a dog was not provoked or that the injury was not accidental would be by clear and convincing evidence.  The bill clarifies under the law’s hearing provisions to provide that a hearing on whether the dog is vicious or potentially dangerous will be held unless the owner agrees to relinquish ownership of the dog. 

“The bill further requires the notice to the owner to inform the owner of the potential consequences of not replying to the notice within seven days.  Under current law and the bill, if the owner does not reply within seven days of the notice, or if the owner relinquishes ownership of the dog, the dog may be humanely destroyed.  The bill eliminates the requirement to tattoo a potentially dangerous dog.

“The bill also modifies the provision under current law concerning liability insurance for potentially dangerous dogs.  The bill allows the court to order this insurance for potentially dangerous dogs, and if applicable, vicious dogs, if it is available.  Furthermore, the court is directed to determine a sufficient and reasonable amount of coverage and a reasonable cost for that coverage; and the insurance company is directed to notify the municipality of the coverage and any lapsing of the policy, if the company can lawfully do so.

“Finally, the bill provides additional protections for the public by authorizing municipalities, if a municipality chooses to do so, to establish procedures for recording and investigating complaints about, and requiring appropriate notice to the public concerning, dogs within the jurisdiction of the municipality that are reported to exhibit menacing, threatening, or other aggressive behavior that may lead to injury to a person or a domestic animal, or that have injured a person but have not been the subject of an action pursuant to the State vicious and potentially dangerous dog law.  The municipality must establish these procedures and requirements by ordinance and it is authorized to require an owner of a dog subject to complaints to post signs or take other action determined necessary by the municipality for the protection of the public.

“With Assembly Floor Amendments
(Proposed By Assemblyman Cohen) ADOPTED: DECEMBER 13, 2007
 
These amendments:
      (1) make changes to the definition of “provoked” in the bill;
      (2) remove certain time limitations by which certain actions may be taken in section 2 of the bill; and
      (3) change the municipal burden of proof with respect to whether the dog was not provoked or that the injury was not accidental from beyond a reasonable doubt to by clear and convincing evidence.

Clause 15 states – This act shall take effect immediately, and shall apply to all pending cases and cases in the process of being adjudicated as of the date of enactment of this act, and to any dogs under court order for humane destruction as of January 1, 2007 but which have not been destroyed as of the date of enactment of this act.

The Bill must now go before the Full Assembly.

See Also: http://fmsglobalnews.wordpress.com/2007/12/02/congo-on-doggie-death-row-gets-worldwide-support-and-tv-publicity-for-his-reprieve/

A committee of the New Jersey Senate has considered a new bill called Congo’s Law and there are hopes that Congo, the German Shepherd dog, will no longer be under sentence of death.

Congo was put on “death row” last June as a vicious dog after protecting his mistress, a female dog and three puppies, from an alleged attack with rake by a gardening contractor. When news of his fate reached the Internet animal activists and dog lovers all over the world signed petitions and sent emails to the Judge in Princeton, home of Congo, to save the dog’s life.

This week thanks to a friend, Anne Soden, who lives in Princeton and took part in one of the demonstration to save Congo, I can bring you news that an American Assemblyman called Neil M Cohen from the New Jersey Senate has proposed a Bill to save the life of Congo, the German Shepherd dog sentenced to death. Thanks Anne.

Neil Cohen is quoted as saying,”Congo’s case underscores the need for the state to modernize the law that deals with dog attacks so it is fair for the owners and the animals.”

Congo’s Bill would revise state animal control law provisions that are alleged to be archaic and barbaric, by making it more difficult to label a dog vicious or to put an animal down.

But a USA website (http://abbyK9.blogspot.com) which shows a picture of two of the James children with Congo, adds a cautious note to say, “Please note that Congo being returned to his family is only temporary while the case goes through the appeal. Congo could still be put to sleep for protecting his family. So please, keep contacting the governor’s office to have this matter put to rest once and for all. The calls and emails are helping!” Details of who and where to write or email appear later in this story.

NEW JERSEY SENATE

In December Congo’s Bill, that would immediately change the state’s vicious dog laws, made its first passage through the Senate.

The New Jersey Assemblyman Neil Cohen, who took this action, is an avid defender of the rights of animal and has sponsored several measures to ensure the humane treatment of animals. He has met Congo and his owners, the James family, at their home in Princeton to raise awareness of his legislation and the dog’s potential fate. Neil Cohen says that under current law the only defense for a dog declared vicious is if the dog has been provoked and acted in defense to protect itself, its offspring, its owner or a family member of the owner.

“The nature of a dog is to protect those around them,” said the Assemblyman. “It’s outrageous that Congo may have been provoked into attacking and this fact is being ignored by authorities.”

A lawyer for Congo’s owners has argued that Congo was provoked when the dog mauled a landscaper on June 5 outside a home in Princeton Township. Neil Cohen’s bill (A-4597) will clarify and revise the current vicious dog law to make it more equitable.

The bill would take into consideration provocation by treating a dog provoked to attack differently than an unprovoked dog that caused bodily injury to a person or domestic animal during an attack.

The Assemblyman said the bill would define striking, grabbing, poking and prodding as threatening actions and behaviors that could incite a dog to defend itself, its offspring or its owner or the owner’s family. The legislation would raise the bar for declaring a dog as vicious. It would require a dog to be found vicious beyond a reasonable doubt — the same standard used for humans charged with a crime. The measure also would give municipal courts an alternative to humanely destroying a vicious dog by giving the owner the option to comply with precautions for keeping a potentially dangerous dog.

During the disposition and appeals process, the bill would allow an owner to keep their dog as long as they complied with current law’s precautions for keeping a potentially dangerous dog. Precautions for owners keeping a dog deemed potentially dangerous include posting signs on their property and minimizing a dog’s potential threat to people and other animals. The bill also would allow an owner and owner’s family to visit their dog during times when their dog might be impounded. The bill would establish a three-month statute of limitations for animal control officer to seize and impound alleged vicious or potentially dangerous dogs.

Neil Cohen said the vicious dog law has not been amended since 1994 and it is long overdue for an update. He hoped his legislation would be fast tracked into law to save the life of the Congo.

Congo was ruled vicious by Princeton Township Municipal Judge Russell Annich, Jr., who also ordered that the dog be put down. The judge’s decision has since been stayed and a state Superior Court Judge has allowed the dog to return to his home, pending appeal, with numerous restrictions, including that he is muzzled and kept in a fenced area.

The fate of Congo created a public debate that has lead to more telephone calls, emails, letters and faxes to Governor Jon S. Corzine’s office than any other issue since the governor took office.

The Bill was carried by a vote of 5 to 0. It now heads to the Assembly Speaker who may or may not decide to post it for a vote by the full Assembly.

ON LINE SUPPORT

Broadcaster Warren Eckstein from Santa Monica, California, an internationally known pet and animal expert, has been carrying news of Congo’s Bill on his website.

On December 19 Warren wrote that the New Jersey Assembly Agriculture and Natural Resources Committee today released legislation Assembly Deputy Speaker Neil M. Cohen crafted that would immediately change the state’s vicious dog laws.

It was also reported – you will be pleased to hear – from Warren’s website that Congo and his partner Lucia are so happy to be back together.

Elizabeth James on Warren’s website wrote, “I think the appeal could take months but we are optimistic. God willing, New Jersey Assemblyman Neil Cohen’s proposal of Congo’s Law will go through and that will be the first line of defense. We are still receiving mail and email from well wishers and supporters all around the globe! Thank you for all the support and we will keep you posted as we progress.”

On another local website for Asbury Park Press, APP.com for Jersey for comments, blogs and shares, Tom Baldwin of Gannett State Bureau reported Assemblyman Neil Cohen, a professed dog-lover, is quoted as saying under this bill Congo gets saved and the bill gives municipal judges needed latitude to deal with dog-bite cases.

Tom Baldwin continues and I smiled, “The story connects hot-issue circuitry. Mix the gentility of leafy, enlightened Princeton with the dog-lovers and the immigration debate — the landscaper is reported to have been an illegal from Honduras — and the story quickly won global appeal.
“Locally, not since a whale swam up the Delaware River to freshwater Trenton in April 2005 has an animal story grabbed headlines, aside from some reported coyote attacks and New Jersey’s enduring debate over whether to allow hunters shoot black bears.”
And finally Abby K 9 tells us the way to get Congo’s ruling reversed, hopefully, is to contact New Jersey governor Jim Corzine. His office is taking calls (and counting them) to support overturning the death sentence for Congo the German Shepherd.

The governor’s office can be contacted at Office of the Governor, PO Box 001,Trenton, NJ 08625. Calling is preferred, (609-292-6000) but you can also email them through the website.

http://www.nj.gov/cgi-bin/governor/govmail/govmail_1.pl

Choose “Law & Public Safety” on the drop-down menu and on the next page, choose “Pardons & Clemency”. It only takes a few seconds to call – they are interested in the number of callers, not what you have to say – and it does not take much longer to email. Assemblyman Cohen telephone number is (908) 624-0880.

CONGO’S BILL
The following includes a statement from the Bill outlining the relevant details of Congo’s Bill.

On December 17 Senate Bill No. 3019 (A.4597) was introduced for the 212th Legislature. The synopsis said it revises vicious and potentially dangerous dog law; designated Congo’s Law.

The final Statement in the Act concerning vicious and potentially dangerous dogs and designated as Congo’s Law, and amending and supplementing P.L.1989, c.307.
enacted by the Senate and General Assembly of the State of New Jersey said,

“This bill clarifies and revises several provisions of the State law that address vicious and potentially dangerous dogs.  It is designated as Congo’s Law in recognition of Congo, a dog in Princeton, New Jersey, that was declared a vicious dog and subject to an order to be euthanized when, by many accounts, it was protecting its owner and the owner’s family members when a landscaping crew, against the owner’s instructions, came onto the owner’s property.

“Specifically, the bill defines the terms ‘provoked’ and ‘unprovoked.’  Whether a dog is provoked or not is currently the only defense under the law to prevent a dog from being declared vicious when it is acting in defense of itself, its offspring, its owner, or a family member of its owner.  Also, under current law, if a municipal court declares a dog to be vicious, it must be humanely destroyed.  This bill provides the municipal court an alternative to humanely destroying a dog that is declared vicious.

“Under the bill, the court may, for equitable reasons, choose an alternative to destroying the dog if the alternative is sufficient to protect the public and is at least as protective and restrictive as the precautions required for keeping a potentially dangerous dog.  The bill allows for an owner to keep the dog pending disposition of the case and any appeals if the owner agrees to comply with those precautions.  The precautions include posting certain signs on the property and minimizing the dog’s contact and threat to people and other animals in specific ways. 

“In addition, the bill authorizes the court to modify certain requirements for potentially dangerous dogs, and vicious dogs that remain with their owners, to be reasonable, affordable and appropriate to the owner’s circumstances. The bill further provides for visitation by the owner and the owner’s family during any impoundment that is required.

“Furthermore, the bill raises the burden of proof in most cases for finding a dog to be vicious or potentially dangerous to beyond a reasonable doubt, instead of by clear and convincing evidence.  The municipal burden of proof for demonstrating that a dog was not provoked or that the injury was not accidental would be by clear and convincing evidence.  The bill clarifies under the law’s hearing provisions to provide that a hearing on whether the dog is vicious or potentially dangerous will be held unless the owner agrees to relinquish ownership of the dog. 

“The bill further requires the notice to the owner to inform the owner of the potential consequences of not replying to the notice within seven days.  Under current law and the bill, if the owner does not reply within seven days of the notice, or if the owner relinquishes ownership of the dog, the dog may be humanely destroyed.  The bill eliminates the requirement to tattoo a potentially dangerous dog.

“The bill also modifies the provision under current law concerning liability insurance for potentially dangerous dogs.  The bill allows the court to order this insurance for potentially dangerous dogs, and if applicable, vicious dogs, if it is available.  Furthermore, the court is directed to determine a sufficient and reasonable amount of coverage and a reasonable cost for that coverage; and the insurance company is directed to notify the municipality of the coverage and any lapsing of the policy, if the company can lawfully do so.

“Finally, the bill provides additional protections for the public by authorizing municipalities, if a municipality chooses to do so, to establish procedures for recording and investigating complaints about, and requiring appropriate notice to the public concerning, dogs within the jurisdiction of the municipality that are reported to exhibit menacing, threatening, or other aggressive behavior that may lead to injury to a person or a domestic animal, or that have injured a person but have not been the subject of an action pursuant to the State vicious and potentially dangerous dog law.  The municipality must establish these procedures and requirements by ordinance and it is authorized to require an owner of a dog subject to complaints to post signs or take other action determined necessary by the municipality for the protection of the public.

“With Assembly Floor Amendments
(Proposed By Assemblyman Cohen) ADOPTED: DECEMBER 13, 2007
 
These amendments:
      (1) make changes to the definition of “provoked” in the bill;
      (2) remove certain time limitations by which certain actions may be taken in section 2 of the bill; and
      (3) change the municipal burden of proof with respect to whether the dog was not provoked or that the injury was not accidental from beyond a reasonable doubt to by clear and convincing evidence.

Clause 15 states – This act shall take effect immediately, and shall apply to all pending cases and cases in the process of being adjudicated as of the date of enactment of this act, and to any dogs under court order for humane destruction as of January 1, 2007 but which have not been destroyed as of the date of enactment of this act.

The Bill must now go before the Full Assembly.

by Jeanne Hambleton  © 2008
NFA Leader Against Pain-Advocate  

A committee of the New Jersey Senate has considered a new bill called Congo’s Law and there are hopes that Congo, the German Shepherd dog, will no longer be under sentence of death.

Congo was put on “death row” last June as a vicious dog after protecting his mistress, a female dog and three puppies, from an alleged attack with rake by a gardening contractor. When news of his fate reached the Internet animal activists and dog lovers all over the world signed petitions and sent emails to the Judge in Princeton, home of Congo, to save the dog’s life.

This week thanks to a friend, Anne Soden, who lives in Princeton and took part in one of the demonstration to save Congo, I can bring you news that an American Assemblyman called Neil M Cohen from the New Jersey Senate has proposed a Bill to save the life of Congo, the German Shepherd dog sentenced to death. Thanks Anne.

Neil Cohen is quoted as saying,”Congo’s case underscores the need for the state to modernize the law that deals with dog attacks so it is fair for the owners and the animals.”

Congo’s Bill would revise state animal control law provisions that are alleged to be archaic and barbaric, by making it more difficult to label a dog vicious or to put an animal down.

But a USA website (http://abbyK9.blogspot.com) which shows a picture of two of the James children with Congo, adds a cautious note to say, “Please note that Congo being returned to his family is only temporary while the case goes through the appeal. Congo could still be put to sleep for protecting his family. So please, keep contacting the governor’s office to have this matter put to rest once and for all. The calls and emails are helping!” Details of who and where to write or email appear later in this story.

NEW JERSEY SENATE

In December Congo’s Bill, that would immediately change the state’s vicious dog laws, made its first passage through the Senate.

The New Jersey Assemblyman Neil Cohen, who took this action, is an avid defender of the rights of animal and has sponsored several measures to ensure the humane treatment of animals. He has met Congo and his owners, the James family, at their home in Princeton to raise awareness of his legislation and the dog’s potential fate. Neil Cohen says that under current law the only defense for a dog declared vicious is if the dog has been provoked and acted in defense to protect itself, its offspring, its owner or a family member of the owner.

“The nature of a dog is to protect those around them,” said the Assemblyman. “It’s outrageous that Congo may have been provoked into attacking and this fact is being ignored by authorities.”

A lawyer for Congo’s owners has argued that Congo was provoked when the dog mauled a landscaper on June 5 outside a home in Princeton Township. Neil Cohen’s bill (A-4597) will clarify and revise the current vicious dog law to make it more equitable.

The bill would take into consideration provocation by treating a dog provoked to attack differently than an unprovoked dog that caused bodily injury to a person or domestic animal during an attack.

The Assemblyman said the bill would define striking, grabbing, poking and prodding as threatening actions and behaviors that could incite a dog to defend itself, its offspring or its owner or the owner’s family. The legislation would raise the bar for declaring a dog as vicious. It would require a dog to be found vicious beyond a reasonable doubt — the same standard used for humans charged with a crime. The measure also would give municipal courts an alternative to humanely destroying a vicious dog by giving the owner the option to comply with precautions for keeping a potentially dangerous dog.

During the disposition and appeals process, the bill would allow an owner to keep their dog as long as they complied with current law’s precautions for keeping a potentially dangerous dog. Precautions for owners keeping a dog deemed potentially dangerous include posting signs on their property and minimizing a dog’s potential threat to people and other animals. The bill also would allow an owner and owner’s family to visit their dog during times when their dog might be impounded. The bill would establish a three-month statute of limitations for animal control officer to
seize and impound alleged vicious or potentially dangerous dogs.

Neil Cohen said the vicious dog law has not been amended since 1994 and it is long overdue for an update. He hoped his legislation would be fast tracked into law to save the life of the Congo.

Congo was ruled vicious by Princeton Township Municipal Judge Russell Annich, Jr., who also ordered that the dog be put down. The judge’s decision has since been stayed and a state Superior Court Judge has allowed the dog to return to his home, pending appeal, with numerous restrictions, including that he is muzzled and kept in a fenced area.

The fate of Congo created a public debate that has lead to more telephone calls, emails, letters and faxes to Governor Jon S. Corzine’s office than any other issue since the governor took office.

The Bill was carried by a vote of 5 to 0. It now heads to the Assembly Speaker who may or may not decide to post it for a vote by the full Assembly.

ON LINE SUPPORT

Broadcaster Warren Eckstein from Santa Monica, California, an internationally known pet and animal expert, has been carrying news of Congo’s Bill on his website.

(http://wareneckstein.com)

On December 19 Warren wrote that the New Jersey Assembly Agriculture and Natural Resources Committee today released legislation Assembly Deputy Speaker Neil M. Cohen crafted that would immediately change the state’s vicious dog laws.

It was also reported – you will be pleased to hear – from Warren’s website that Congo and his partner Lucia are so happy to be back together.

Elizabeth James on Warren’s website wrote, “I think the appeal could take months but we are optimistic. God willing, New Jersey Assemblyman Neil Cohen’s proposal of Congo’s Law will go through and that will be the first line of defense. We are still receiving mail and email from well wishers and supporters all around the globe! Thank you for all the support and we will keep you posted as we progress.”

On another local website for Asbury Park Press, APP.com for Jersey for comments, blogs and shares, Tom Baldwin of Gannett State Bureau reported Assemblyman Neil Cohen, a professed dog-lover, is quoted as saying under this bill Congo gets saved and the bill gives municipal judges needed latitude to deal with dog-bite cases.

Tom Baldwin continues and I smiled, “The story connects hot-issue circuitry. Mix the gentility of leafy, enlightened Princeton with the dog-lovers and the immigration debate — the landscaper is reported to have been an illegal from Honduras — and the story quickly won global appeal.
“Locally, not since a whale swam up the Delaware River to freshwater Trenton in April 2005 has an animal story grabbed headlines, aside from some reported coyote attacks and New Jersey’s enduring debate over whether to allow hunters shoot black bears.”
And finally Abby K 9 tells us the way to get Congo’s ruling reversed, hopefully, is to contact New Jersey governor Jim Corzine. His office is taking calls (and counting them) to support overturning the death sentence for Congo the German Shepherd.

The governor’s office can be contacted at Office of the Governor, PO Box 001,Trenton, NJ 08625. Calling is preferred, (609-292-6000) but you can also email them through the website.

http://www.nj.gov/cgi-bin/governor/govmail/govmail_1.pl

Choose “Law & Public Safety” on the drop-down menu and on the next page, choose “Pardons & Clemency”. It only takes a few seconds to call – they are interested in the number of callers, not what you have to say – and it does not take much longer to email. Assemblyman Cohen telephone number is (908) 624-0880.

CONGO’S BILL
The following includes a statement from the Bill outlining the relevant details of Congo’s Bill.

On December 17 Senate Bill No. 3019 (A.4597) was introduced for the 212th Legislature. The synopsis said it revises vicious and potentially dangerous dog law; designated Congo’s Law.

The final Statement in the Act concerning vicious and potentially dangerous dogs and designated as Congo’s Law, and amending and supplementing P.L.1989, c.307.
enacted by the Senate and General Assembly of the State of New Jersey said,

“This bill clarifies and revises several provisions of the State law that address vicious and potentially dangerous dogs.  It is designated as Congo’s Law in recognition of Congo, a dog in Princeton, New Jersey, that was declared a vicious dog and subject to an order to be euthanized when, by many accounts, it was protecting its owner and the owner’s family members when a landscaping crew, against the owner’s instructions, came onto the owner’s property.

“Specifically, the bill defines the terms ‘provoked’ and ‘unprovoked.’  Whether a dog is provoked or not is currently the only defense under the law to prevent a dog from being declared vicious when it is acting in defense of itself, its offspring, its owner, or a family member of its owner.  Also, under current law, if a municipal court declares a dog to be vicious, it must be humanely destroyed.  This bill provides the municipal court an alternative to humanely destroying a dog that is declared vicious.

“Under the bill, the court may, for equitable reasons, choose an alternative to destroying the dog if the alternative is sufficient to protect the public and is at least as protective and restrictive as the precautions required for keeping a potentially dangerous dog.  The bill allows for an owner to keep the dog pending disposition of the case and any appeals if the owner agrees to comply with those precautions.  The precautions include posting certain signs on the property and minimizing the dog’s contact and threat to people and other animals in specific ways. 

“In addition, the bill authorizes the court to modify certain requirements for potentially dangerous dogs, and vicious dogs that remain with their owners, to be reasonable, affordable and appropriate to the owner’s circumstances. The bill further provides for visitation by the owner and the owner’s family during any impoundment that is required.

“Furthermore, the bill raises the burden of proof in most cases for finding a dog to be vicious or potentially dangerous to beyond a reasonable doubt, instead of by clear and convincing evidence.  The municipal burden of proof for demonstrating that a dog was not provoked or that the injury was not accidental would be by clear and convincing evidence.  The bill clarifies under the law’s hearing provisions to provide that a hearing on whether the dog is vicious or potentially dangerous will be held unless the owner agrees to relinquish ownership of the dog. 

“The bill further requires the notice to the owner to inform the owner of the potential consequences of not replying to the notice within seven days.  Under current law and the bill, if the owner does not reply within seven days of the notice, or if the owner relinquishes ownership of the dog, the dog may be humanely destroyed.  The bill eliminates the requirement to tattoo a potentially dangerous dog.

“The bill also modifies the provision under current law concerning liability insurance for potentially dangerous dogs.  The bill allows the court to order this insurance for potentially dangerous dogs, and if applicable, vicious dogs, if it is available.  Furthermore, the court is directed to determine a sufficient and reasonable amount of coverage and a reasonable cost for that coverage; and the insurance company is directed to notify the municipality of the coverage and any lapsing of the policy, if the company can lawfully do so.

“Finally, the bill provides additional protections for the public by authorizing municipalities, if a municipality chooses to do so, to establish procedures for recording and investigating complaints about, and requiring appropriate notice to the public concerning, dogs within the jurisdiction of the municipality that are reported to exhibit menacing, threatening, or other aggressive behavior that may lead to injury to a person or a domestic animal, or that have injured a person but have not been the subject of an action pursuant to the State vicious and potentially dangerous dog law.  The municipality must establish these procedures and requirements by ordinance and it is authorized to require an owner of a dog subject to complaints to post signs or take other action determined necessary by the municipality for the protection of the public.

“With Assembly Floor Amendments
(Proposed By Assemblyman Cohen) ADOPTED: DECEMBER 13, 2007
 
These amendments:
      (1) make changes to the definition of “provoked” in the bill;
      (2) remove certain time limitations by which certain actions may be taken in section 2 of the bill; and
      (3) change the municipal burden of proof with respect to whether the dog was not provoked or that the injury was not accidental from beyond a reasonable doubt to by clear and convincing evidence.

Clause 15 states – This act shall take effect immediately, and shall apply to all pending cases and cases in the process of being adjudicated as of the date of enactment of this act, and to any dogs under court order for humane destruction as of January 1, 2007 but which have not been destroyed as of the date of enactment of this act.

The Bill must now go before the Full Assembly.

See Also: http://www.ipetitions.com/petition/savecongo/

Restless legs syndrome doubles risk of stroke and heart disease

Contact: Angela Babb
ababb@aan.com
651-695-2789
American Academy of Neurology

ST. PAUL, Minn. – People with restless legs syndrome (RLS) are twice as likely to have a stroke or heart disease compared to people without RLS, and the risk is greatest in those with the most frequent and severe symptoms, according to research published in the January 1, 2008, issue of Neurology®, the medical journal of the American Academy of Neurology.

The study, the largest of its kind enrolling both men and women, involved 3,433 people with an average age of 68 who were enrolled in the Sleep Heart Health Study. Participants were diagnosed with RLS by detailed questionnaire and asked if they had been diagnosed with a variety of systemic diseases including cardiovascular disease and cerebrovascular disease. Of the participants, nearly seven percent of women and three percent of men had RLS.

The study found people with RLS were more than twice as likely to have cardiovascular disease or cerebrovascular disease. The results remained the same after adjusting for age, sex, race, body mass index, diabetes, high blood pressure, high blood pressure medication, HDL/LDL cholesterol levels, and smoking.

“The association of RLS with heart disease and stroke was strongest in those people who had RLS symptoms at least 16 times per month,” said study author John W. Winkelman, MD, PhD, with Harvard Medical School in Boston. “There was also an increased risk among people who said their RLS symptoms were severe compared to those with less bothersome symptoms.”

Winkelman says although this study does not show that RLS causes cardiovascular and cerebrovascular disease, a number of potential mechanics for such a process exist. “In particular, most people with RLS have as many as 200 to 300 periodic leg movements per night of sleep and these leg movements are associated with substantial acute increases in both blood pressure and heart rate, which may, over the long term, produce cardiovascular or cerebrovascular disease.

Winkelman says there are limitations to the study, including that the diagnosis of RLS was self-reported by questionnaire rather than by clinical interview.

###
The study was supported by grants from the National Heart, Lung and Blood Institute.

The American Academy of Neurology, an association of more than 20,000 neurologists and neuroscience professionals, is dedicated to improving patient care through education and research. A neurologist is a doctor with specialized training in diagnosing, treating and managing disorders of the brain and nervous system such as stroke, Alzheimer’s disease, epilepsy, Parkinson disease, and multiple sclerosis.

For more information about the American Academy of Neurology, visit http://www.aan.com.

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GROWING SUPPORT FOR FIBROMITE AHEAD OF HER TIME

by Jeanne Hambleton © 2007
NFA Leader Against Pain-Advocate

You may remember the story about Linda Allen, a UK fibromite who in spite of being severely disabled with this invisible disability has been raising FMS awareness among medical students. Her gracious offer to help anyone willing to follow her example and spread the word has resulted in a flurry of emails, mostly from the USA and Canada.

While Linda and I are both willing to help, advise and encourage anyone from anywhere to pick up the gauntlet and run with it by talking to medical students, it is surprising that so few UK sufferers have written. It is here that we believe many GPs are still blinkered as far as diagnosing fibromyalgia is concerned.

For some long time those with this awful syndrome have been telling me that their doctor suggests it is all in their head. Trust me I am a fibromite – you are not imagining the aches, pains, chronic fatigue, sleeplessness, cognitive problems and many of the other nasties that cohabit with fibromyalgia. These ARE the symptoms.

All this time I have been thinking that in Canada and the USA, where there are so many knowledgeable experts in this field, fibromites were being recognised and diagnosed far more quickly than the years it takes here in the UK.

The moral behind this thinking is, we have a huge worldwide job to raise awareness about fibromyalgia, not only in the UK but just about everywhere. With this is mind it is even more important that you contact your local health authority or training hospital and offer to be interviewed by medical students and answer questions about your fibromyalgia and any other dispositions you may have living with your FMS. I hope they will jump at the opportunity. If they do not, tell us and we will name and shame them.

I often hear fibromites say, “It is so good to be able to share my problems, pains and concerns with someone,” – here is the golden opportunity – and you can talk about yourself and your health and you could be helping to find cure. Some of those young doctors may decide to specialise in this field. Whatever they do they will have an inside knowledge of fibromyalgia and be able to recognise FMS albeit in their own surgery, in accident and emergency clinic, or a hospital ward.

If you can do this it would be a giant step for fibromyalgia and would encourage more research as the world hears about the pain we suffer. It really is up to you – Linda and I cannot do it alone.

LINDA’S ANSWERS

Linda has asked me to thank everyone who has written to her like most families with young children she has struggling to get ready for Christmas with all the trimmings to delight her young son. Linda is making a great effort to reply to you as soon as she can.

We are delighted with the support so far and hope details of these emails will encourage you to go further with raising awareness.

Jane wrote, “One minute you are pleased that there is someone out there that has fibro then you feel bad that someone must hurt like you do”. 

Bambi sent an email saying, “You are my inspiration! I just read about you in an email I receive from Tenderpoints. I meant what I said.”

Bambi who lives in the States and suffers with fibromyalgia, rheumatoid arthritis, Lupus, chronic pain syndrome, and has undergone a number of operations, is taking “a variety of med’s and still going through the motions of trying to find what works best for me.” She writes about her journey through medications and diagnosis leading to the sad and frustrating times that so many FM sufferers go through.

Regardless of her pain she writes, “When I was reading about you, all I kept thinking was that I’ve found my mentor! You see, I am a 44 year old, mother of 2, wife of 22 yrs……. for too many years I have been battling the stigma’s of living with chronic pain. I won’t go into an entire boring full biography about myself! Let me just tell you briefly, I’m an ex-dancer…jazz, ballet, that kind of dancer! HA!…..most people assume with a name like ‘Bambi’, it’s another kind of dance I used to do!   I’m a freelance artist, who on a good day is lucky enough to work on sketching, painting, or some kind of inspiration I may have. I have a positive outlook the majority of the time.

“I say it this way because I feel it’s important to allow yourself to have those days that are bad, let your body heal itself, rest, etc. We have earned the right to every now and then have a little ‘bitch’ session. I think it is healthy to vent every now and then! I also feel though it is our fault we have what we have, we have to learn to accept what we can’t help, (not give into it though!) It is not anyone else’s fault that we feel bad, so why should they have to suffer too. I try to keep a good sense of humor, a smile even when I hurt….I can be in pain but still be glad I have my family.

(Hi Bambi I am the writer with FMS and it is not your fault. It is now thought to be genetic and if you ask your parents and grand parents you may find some have suffered very bad arthritis, rheumatism or fibrositis. If we have the gene it only takes a trauma or stress for an A type personality – workaholic – to trigger the fibromyalgia. I write this as a patient with no medical training, but this is what I have heard from medical experts. However I do agree you should not take your suffering out on other people and a positive outlook is so very important. Jeanne)

“Anyway, my point is that, through out this entire “journey” of chronic pain, I figured there is someway I can help, so other people don’t have to go through what I have had to endure! I admire what you and your Doctor are doing and would love to do the same!….I know, I apologize, I could have said this at the beginning, in one sentence!”
Bambi signed her email with “peace, laughter & miracles”.

Linda told her, “You have to have a sense of humour to survive being fibromyalgic…. life is for living is what I say and I refuse to sit in a chair and rock for the next 50 years!! I am not into feeling sorry for myself at all. It is counter productive and I am with you on the positive attitude thing, you have got to have this or you will go under. So you sound like an ideal candidate for doing what I am doing, chatting to medical students on an informal basis and educating them about ourselves, our condition and the whole shebang we go through for a diagnosis, treatment, support and help. Think about it, you’d be fab!!”

Catherine from somewhere in New York who read Linda’s story in Tenderpoints (from Fibrohugs) thanked her so very much for what she is doing for all FMS patients around the world.

She wrote, “I see a rheumatologist at a teaching hospital here in upstate New York, and I think I shall print this for him.  He always wants to learn and I wonder if I would ever have your strength.  Even if I didn’t, your story may be just what I need.”
Catherine signs herself a partner in FMS/CFIDS.

Karen has had FMS for seven years and writes, “When I read about what your doing, I thought that this lady is doing exactly what I have been wanting to do for years now. And I go for treatment for the perfect place for it. That is Oklahoma University Research Hospital. We call it OU for short. But my thinking has always been that this is such a complex disease that you would have to be a teacher just to discuss it, because 15 minutes with your GP just doesn’t get it.

“And only someone with this disease can tell you in detail anything about it and it takes a long time to do that because there is so much to tell. I would love to share my knowledge with some soon to be Doctors. This is where I know you will understand that we know a lot more than they do about FMS because we were forced to learn about what was wrong with us because nobody could tell us. All I ever heard was, ‘I am sorry for you but I can’t help you and good luck. Hope you don’t end up in a wheel chair.’

“I have never written to anybody else that has this disease, but your story was the one that turned on the light. I hope to hear from you, God Bless You.”

Mary who works in the medical profession in the States said she was given news of Linda’s story by a holistic nurse who has been helping her with pain control.
Diagnosed with fibromyalgia after many years of ‘non-diagnoses’ she said the problem was not only an unawareness on the physicians part, but her own unwillingness to accept it because of the attitudes I have encountered for quite some time of the doctors who label FMS as a non-existent disorder.”

Mary suggests these doctors think fibromyalgia is something, “We give patients to pacify them when they need a diagnosis”. In other words – for all the hypochondriacs out there.

“It angers me to think about it now, because these physicians have labeled me as such and put me on anti-depressants. Now I hear behind my back from their nurses and assistants that they diagnose fibromyalgia but don’t believe it,” she said adding she was frustrated and disillusioned with medicine.

Linda suggests the physician “desperately need educating into the severity of the condition you deal with 24/7. I could send you some information specifically for doctors to print off if you like? Maybe it would give them a kick up the butt? It couldn’t hurt to try eh?”

Joan from Canada said she could relate to Linda’s fibromyalgia and back problems. She suggests, “I have a specialist here in Toronto who insists fibro is related to disruption of the discs in the back and neck. Certainly the activity and especially horseback riding would contribute to your fibro. I have been on long term disability for 12 years now and everything she has directed me to do has been right. We do walk a very fine line in fibro. If we do too much we will relapse. 

“I admire the work you are doing in educating young would-be doctors and students. It is something I have wanted to do for a long, long time. I just did not know quite how to get started. 

“I felt such a pull in my heart when I read your bio, I just wanted to share with you what I believe has helped me.  Maybe it will help you too! We are the same age. Too young to let life pass us by!” said Joan.

Gloria who I think is also from the States offered congratulations to Linda for stepping up and adds, “I, like you, have had fibromyalgia since about the 1980′s, maybe even longer.  I was (and still am) very active, although I tire easily.  The specialty doctor that I saw at that time discovered my “trigger points” but he did not have a name for the illness.  Unfortunately, my regular GP was not the greatest.  I had a terrible flare-up about 7 or 8 years ago.  I went to my GP with a list of my symptoms.  He looked at the list, looked at me and told me that “someone who writes a list like this is mental.”  This was someone that I trusted my health with for over forty years.  I quickly changed physicians.  I started with an internist about a month later, gave the same list to him.  He took x-rays and blood work, sat for an hour asking me questions and told me to return in three weeks.  When I returned, he had all of the test results in hand.  We talked some more and he mentioned “myalgia.”  I asked him if he said fibromyalgia.  He said, “No, do you think you have that?”  I said I don’t know, but I had just heard of it.  He tested the trigger points and diagnosed me that day with fibromyalgia.  It has been a blessing to find a doctor that listens and is empathetic to the pain that FMS involves. I live with pain on a daily basis and some days are worse/better than others.”

This is just another story which shows just how important it is to educate the medical students and the young doctors who are willing to listen.

Jackie has such empathy with Linda she suggests, “I felt as if I were reading my life and medical condition on the page.  I have written to the FFC here in the states but have gotten no reply as of yet.  They have several centers here in the US but none are very close to me and you have to do your first visit in person, after that they do something either thru mail or something.  But it’s too hard for me to travel, as you probably know. I think my fibro was partially caused by having rheumatic fever twice as a child.  In my teens I had great pain, then they called ‘growing pains’. 

“I like you was active even after diagnosis until I just could not do it anymore.  It hurts so bad emotionally not to be able to do what I used to do. 

“In the past my son in law said that my house was so clean you could eat off the floors.  I am not able to do that anymore.  Nor do the things I want to do. And I agree with you that a loss can cause a real fibro flare, because I lost my youngest grandson age 16 in June.  The only way I can survive that is knowing that he is with God.

“Thank you so much for your article.  Just having someone out there that I can  “cry” to means a lot. Now I have to go, my back is hurting so bad. Love. A sister in fibro,”

Brenda who I think is from California (emails give little away) wrote and said,
“Thank you for your story particularly the “letter to normals” that I have sent this on to friends and family as it sums up how I feel. I would like to help spread the word. What can I do to help?”

Although Brenda believes her GP will not be very helpful she told Linda, “I do have an appointment with my rheumatologist in January so will ask her if I can talk to med students.”

Brenda who labels FMS as ‘the beast’, tells Linda. “It is very difficult here to get anything prescribed for pain as people have a tendency to sue their doctor if they get addicted to the drug. I had to give my GP a letter promising him not to sue him so he would give me a script for valium so I could sleep at night as the flexeril was no longer working. Anyway I am taking 4mg at night and it has helped tremendously so far. But I am stuck with over the counter pain killers which on bad days just aren’t effective. I have bought a couple of books on fibromyagia recently and it seems there is more research money being invested as FMS is on the rise.”

Encouraging Brenda to take up the challenge Linda replied, “I started speaking to medical students about our much misunderstood condition as they need to do ‘practice consultations’ as part of their training and speak to people who have a chronic pain condition.”

Betty who wrote to Linda about specific enzyme based natural medication which had worked for her own for back pains, added, “Today’s doctors still have no answers as I have fibromyalgia and chronic fatigue plus the latest visit to the doctor has her looking at something called Polymyalgia. I think that is what she called it. The only thing that helps that is Prednisone and I refuse to go on steroids, so I’m hoping the blood tests come back negative for that condition. Take care… and keep the faith.”

Replying Linda thanked Betty and is humbled by her kind words. She added the message “reaffirms my faith in humanity and for that I thank you from the bottom of my heart”.

Having invited the world to keep in touch with us, it occurs to me that as fibromyalgia fighters we should perhaps come together as a VIRTUAL FIBROMYALGIA AWARENESS GROUP.

This would allow us all to enjoy the successes of others and help with the few disappointments, if any, of trying to raise awareness about this rotten invisible disability. We will protect your privacy and will not divulge or print anything other than your first name and maybe the country in which you live…unless you instruct us otherwise or include your own email in the text.

If there is enough support for the idea we thought that for membership of our elite VFAG you should have FMS, CFS/ME or be a carer for someone with these disabilities. We will do our best to print your stories – maybe not always in full and will reserve the right to edit anything which may be deemed as offensive or likely to have any legal connotation.

I would ask you to send me your emails with information your endeavours to raise awareness with medical students or doctors, or in any other way, highlighting any publicity you have managed to achieve, with copies to both Linda and I.

We hope you will share your triumphs with others and we will ‘move mountains’ and raise awareness. With enough support we will start our own weblog where you will be published and able to tell our friends.

We are depending on you. Please email me at jeannehambleton@mac.com and Linda at lindajaneallen@hotmail.co.uk and with your success stories. You can also find me on
http://jeannehambleton77.wordpress.com

Take care. Keep well and go to it. Jeanne

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WHAT DOES LOVE MEAN

by Jeanne Hambleton © 2007
NFA Leader Against Pain-Advocate

If you listen to the children singing their carols as we approach Christmas you will hear it is the season of goodwill to all men, women and especially fibromites. They may not say those words but I am sure they mean it.

It is a time when we exchange gifts – large and small – and may casually add “With love from…”

But we British can be a trifle reserved and tend not to be so free our ‘love’ when writing to someone. The Brits seem to reserve their love for family and close friends. Also we are not ‘touchy feely’ and fail to give someone a hug when it would do really so much good for the giver and the receiver.

But love means different things to different people. There is young love, the love of a newly wedded couple, mother’s love, grandmother’s love and the love, understanding and senior moments shared by those who have spent many years of their life together.

But have you ever thought just how young children interpret love? The following story came to me from another fibromite and at this joyous festive season, I wanted to share these innocent views of children between the ages of our and eight. These reponses were made to questions asked by a group of professional people. They claimed the answers they got were broader and deeper than anyone could have imagined. What do you think?

 ’What does love mean?’

‘When my grandmother got arthritis, she couldn’t bend over and paint her toenails any more. So my grandfather does it for her all the time, even when his hands got arthritis too. That’s love.’
Rebecca- age 8

‘When someone loves you, the way they say your name is different. You just know that your name is safe in their mouth.’
Billy – age 4

‘Love is when a girl puts on perfume and a boy puts on shaving cologne and they go out and smell each other.’
Karl – age 5

‘Love is when you go out to eat and give somebody most of your French fries without making them give you any of theirs.’
Chrissy – age 6

‘Love is what makes you smile when you’re tired.’
Terri – age 4

‘Love is when my mommy makes coffee for my daddy and she takes a sip before giving it to him, to make sure the taste is OK.’
Danny – age 7

‘Love is when you kiss all the time. Then when you get tired of kissing, you still want to be together and you talk more. My Mommy and Daddy are like that. They look gross when they kiss’
Emily – age 8

‘Love is what’s in the room with you at Christmas if you stop opening presents and listen.’
Bobby – age 7 (Wow!)

‘If you want to learn to love better, you should start with a friend who you hate,’ Nikka – age 6 (We need a few million more Nikka’s on this planet)

‘Love is when you tell a guy you like his shirt, then he wears it everyday.’
Noelle – age 7

‘Love is like a little old woman and a little old man who are still friends even after they know each other so well.’
Tommy – age 6

‘During my piano recital, I was on a stage and I was scared. I looked at all the people watching me and saw my daddy waving and smiling. He was the only one doing that. I wasn’t scared anymore.’
Cindy – age 8

‘My mommy loves me more than anybody. You don’t see anyone else kissing me to sleep at night.’
Clare – age 6

‘Love is when Mommy gives Daddy the best piece of chicken.’
Elaine-age 5

‘Love is when Mommy sees Daddy smelly and sweaty and still says he is handsomer than Brad Pitt.’
Chris – age 7

‘Love is when your puppy licks your face even after you left him alone all day.’
Mary Ann – age 4

‘I know my older sister loves me because she gives me all her old clothes and has to go out and buy new ones.’
Lauren – age 4

‘When you love somebody, your eyelashes go up and down and little stars come out of you.’ (what an image)
Karen – age 7

‘You really shouldn’t say ‘I love you’ unless you mean it. But if you mean it, you should say it a lot. People forget.’
Jessica – age 8

And the final one – Author and lecturer Leo Buscaglia once talked about a contest he was asked to judge. The purpose of the contest was to find the most caring child.

The winner was a four year old child whose next door neighbour was an elderly gentleman who had recently lost his wife. Upon seeing the man cry, the little boy went into the old gentleman’s yard, climbed onto his lap, and just sat there.

When his Mother asked what he had said to the neighbor, the little boy said, ‘Nothing, I just helped him cry’

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