Still no treatment in Europe for the 14 million FMS patients trapped in pain!

From the FMS Global News Desk of Jeanne Hambleton (UK) Press Release from ENFA – 29.04.2009 Brussels, (29.04.2009) Last week was high on activities for the Fibromyalgia community, on one hand the European Network of Fibromyalgia Associations (ENFA) met with the European Health Commissioner Ms Androulla Vassiliou1. And on the other hand the European Medicines [...]

WOMEN IN NETS CLAIMING TO BE TRAPPED IN PAIN IN 8 EUROPEAN CITIES

From the Fibromyalgia News Desk of Jeanne Hambleton PRESS RELEASE Embargoed until 7.3.09 Brussels, (07.03.2009) – This Saturday has not only been marked by the International Women’s Day but also by the European action day on Fibromyalgia. While normal people were doing their usual Saturday’s shopping, the European Network of Fibromyalgia Associations and its Member [...]

EU COMMISSIONER FOR HEALTH ANSWERS QUESTIONS ON FIBROMYALGIA

From the News Desk of Jeanne Hambleton   I have just received the following Q&A information. While this is not a recent conversation, it is evidence that fibromyalgia is being discussed in the Europe.   EU QUESTIONS AND ANSWERS   On 28 October 2008, European Commissioner for Health, Ms Androulla Vassiliou answered questions put to [...]

Dual action

From Jeanne Hambleton’s FMS Global News Desk By Sandra Flahive (FiftySomething) January 10 2009 Bill and Susan Steffey of Grimes both have seen great physical improvements since they began exercising together at the Wellness Center at Mercy Medical Center. Susan, 55, first started a regular workout regimen in July on the advice of her rheumatologist. [...]

European Network of Fibromyalgia Associations

From the desk of Jeanne Hambleton Members of the European Parliament (MEPs) adopt written declaration 69/2008 on fibromyalgia initiated by five deputies and the European Network of Fibromyalgia Associations (ENFA). Brussels (16.12.2008) – Written Declaration 69/2008 on fibromyalgia has been a success in the European Parliament by finding the necessary quorum of signatories of 393 [...]

FIBROMYALGIA: FIRST STEP FORWARD IS EU RECOGNITION SAY MEPS

FROM THE DESK of Jeanne Hambleton – October 27 2008 Just imagine what would happen if the word ‘fibromyalgia’ was casually dropped into conversation. Chances are there would be a lot of blank faces staring back. So just think what its like for the 14 million people in the EU, whose condition, fibromyalgia, is at [...]

NEW DATA ON THERAPIES FOR PAIN AND INFLAMMATION FROM PFIZER

By Jeanne Hambleton © Fibromite NFA Leader Against Pain While I am a great believer in positive thinking, I have to accept that medication can be the only way that allows some people to live with pain and this impossible invisible condition called fibromyalgia. From this point of view I must say I am pleased [...]

GROWING SUPPORT FOR FIBROMITE AHEAD OF HER TIME

by Jeanne Hambleton © 2007 NFA Leader Against Pain-Advocate You may remember the story about Linda Allen, a UK fibromite who in spite of being severely disabled with this invisible disability has been raising FMS awareness among medical students. Her gracious offer to help anyone willing to follow her example and spread the word has [...]

Phoenix Rising Researcher of the Year, Paper of the Year and Top Ten Papers

by Cort Johnson © 2007 This is coming a bit late but I encourage you to take a look back at 2006. 2006- “The Year of Innovation” – was a extraordinarily interesting year in ME/CFS as researchers again and again applied cutting edge technology in their efforts to understand it These efforts resulted in important [...]

A PICTURES PAINTS A THOUSAND WORDS

by Jeanne Hambleton © 2007 NFA Leader Against Pain-Advocate I don’t know how in the world a ‘Man in a Bear Suit’ won the prestigious UK Turner Prize. I am still shaking my head in amazement. I would suggest the judges should have looked at http://www.art4africa.co.uk/ before making their decision. This certainly brought a lump [...]