Still no treatment in Europe for the 14 million FMS patients trapped in pain!

From the FMS Global News Desk of Jeanne Hambleton (UK) Press Release from ENFA – 29.04.2009 Brussels, (29.04.2009) Last week was high on activities for the Fibromyalgia community, on one hand the European Network of Fibromyalgia Associations (ENFA) met with the European Health Commissioner Ms Androulla Vassiliou1. And on the other hand the European Medicines [...]

WOMEN IN NETS CLAIMING TO BE TRAPPED IN PAIN IN 8 EUROPEAN CITIES

From the Fibromyalgia News Desk of Jeanne Hambleton PRESS RELEASE Embargoed until 7.3.09 Brussels, (07.03.2009) – This Saturday has not only been marked by the International Women’s Day but also by the European action day on Fibromyalgia. While normal people were doing their usual Saturday’s shopping, the European Network of Fibromyalgia Associations and its Member [...]

European Network of Fibromyalgia Associations

From the desk of Jeanne Hambleton Members of the European Parliament (MEPs) adopt written declaration 69/2008 on fibromyalgia initiated by five deputies and the European Network of Fibromyalgia Associations (ENFA). Brussels (16.12.2008) – Written Declaration 69/2008 on fibromyalgia has been a success in the European Parliament by finding the necessary quorum of signatories of 393 [...]

NEW DATA ON THERAPIES FOR PAIN AND INFLAMMATION FROM PFIZER

By Jeanne Hambleton © Fibromite NFA Leader Against Pain While I am a great believer in positive thinking, I have to accept that medication can be the only way that allows some people to live with pain and this impossible invisible condition called fibromyalgia. From this point of view I must say I am pleased [...]

GROWING SUPPORT FOR FIBROMITE AHEAD OF HER TIME

by Jeanne Hambleton © 2007 NFA Leader Against Pain-Advocate You may remember the story about Linda Allen, a UK fibromite who in spite of being severely disabled with this invisible disability has been raising FMS awareness among medical students. Her gracious offer to help anyone willing to follow her example and spread the word has [...]

Phoenix Rising Researcher of the Year, Paper of the Year and Top Ten Papers

by Cort Johnson © 2007 This is coming a bit late but I encourage you to take a look back at 2006. 2006- “The Year of Innovation” – was a extraordinarily interesting year in ME/CFS as researchers again and again applied cutting edge technology in their efforts to understand it These efforts resulted in important [...]

A PICTURES PAINTS A THOUSAND WORDS

by Jeanne Hambleton © 2007 NFA Leader Against Pain-Advocate I don’t know how in the world a ‘Man in a Bear Suit’ won the prestigious UK Turner Prize. I am still shaking my head in amazement. I would suggest the judges should have looked at http://www.art4africa.co.uk/ before making their decision. This certainly brought a lump [...]

CONGO ON DOGGIE DEATH ROW GETS WORLDWIDE SUPPORT AND TV PUBLICITY FOR HIS REPRIEVE

by Jeanne Hambleton © Without prejudice NFA Leader Against Pain Last month I wrote the sad story of a German Shepherd dog called Congo who had been sentenced to death, and who is now on a temporary reprieve awaiting a final verdict. His crime was doing what all dogs do – protecting the ones he [...]

CONGO GETS TEMPORARY REPRIEVE WHILE JUDGE RECEIVES DEATH THREATS

by Jeanne Hambleton © 2007 Without prejudice Those of you who made the effort to save the life of Congo, a two-year-old German Shepherd Dog, will be delighted to hear he has a temporary reprieve and is back home with his family. Thanks to all those who telephoned, wrote and sent emails in answer to [...]

Chronic fatigue syndrome after q Fever.

Ledina D, Bradarić N, Milas I, Ivić I, Brncić N, Kuzmicić N. Department of infectious diseases, Split University Hospital, Split; Croatia. Background: Q fever is a common and acute but rare chronic zoonosis caused by Coxiella burnetii. Its acute form manifests as atypical pneumonia, flu-like syndrome, or hepatitis. Some authors observed symptoms of chronic fatigue [...]