CAT’S CHALLENGE AND LINDA’S FIBRO FOOTSTEPS

by Jeanne Hambleton © 2008
NFA Leader Against Pain-Advocate
This is the story of two ladies from the UK who unlike the New York Times, just KNOW from personal experience that fibromyalgia IS REAL?
Many of you may remember Linda Allen, the fibromite ahead of her time, who was helping medical students to learn about fibromyalgia.
Linda, married, [...]

Welcome to the end of the year ‘Story Edition’ of Phoenix Rising.

The edition, which was delayed because of computer problems, was designed to
give ME/CFS patients a chance to ponder the difficulties and opportunities
that millions of people across the globe face as we enter the new year.
The challenges facing the CFS community are enormous.
These are three remarkably different stories; one involves a Canadian now
almost [...]

FOR IMMEDIATE RELEASE

FOR IMMEDIATE RELEASE
The Fibromyalgia/Chronic Fatigue Self-Help Support Group
February 7, 2008 Meeting
The FIBROMYALGIA and CHRONIC FATIGUE SELF-HELP SUPPORT GROUP will meet Thursday, February 7, 2008 at 7:00PM at Quest-4-Life Wellness Center In Lenoir, NC. The program will focus on “Good Heart Health As Related to Fibromyalgia and Chronic Fatigue”. Is your chest pain heart pain [...]

HELP WITH RESEARCH

by Jeanne Hambleton © 2008
NFA Leader Against Pain-Advocate
If you have fibromyalgia, has your doctor has prescribed nefopam also known as
Acupan, as a strong painkiller for you? Have you suffered any side effects? Does it suit you and kill off your pain?
Professor Patrick Wood, M D, well known for his fibromyalgia and brain imagining research [...]

Help for young people misdiagnosed, isolated and forgotten

PRESS RELEASE: 23 JANUARY 2008
Help for young people misdiagnosed, isolated and forgotten
For the first time two charities are coming together to reach out to young people of
Sussex suffering from a very painful and distressing illness.
The Association of Young People with ME, AYME in partnership with the
Fibromyalgia Support Group for Surrey and Sussex [...]

FIBROMYALGIA – IS IT REAL?

by Jeanne Hambleton © 2008
NFA Leader Against Pain-Advocate
An article, suggesting that fibromyalgia is not real, has appeared in the New York Times in the last few days, has certainly opened a can of worms among the FM community. The story, written by Alex Berenson and called ‘Drug Approved. Is Disease Real?’ refers to [...]

“Drug Approved. Is Disease Real?”

Malinda Wilcox, a good friend, sent me this article that should be read by everyone that has fibromyalgia or works in the medical profession. Enclosed you will find comments by another good friend Dr. Daniel Clauw. This article first appeared in the New York Times last week and was first brought to my attention by [...]

Make Love Not War

This came to me this Sunday morning. I was touched and glad to be reminded of the sacrifices our troops (and indeed your troops) make for us. It is so easy to forget their living hell and their emotional insecurities – living with death by their side. My thoughts go out [...]

[Perceived pain and weather changes in rheumatic patients]

[Article in Portuguese]
Miranda LC, Parente M, Silva C, Clemente-Coelho P, Santos H, Cortes S, Medeiros D, Ribeiro JS, Barcelos F, Sousa M, Miguel C, Figueiredo R, Mediavilla M, Simões E, Silva M, Patto JV, Madeira H, Ferreira J, Micaelo M, Leitão R, Las V, Faustino A, Teixeira A.
Instituto Português de Reumatologia. luis.miranda@ipr.pt
INTRODUCTION: Rheumatic patients with [...]

News about the Fibromyalgia Conference

If you are new, or haven’t heard, we are having our 5th conference in Hollywood, Florida on April 24-27, 2008. It is at the Ramada Hollywood Beach Resort. This hotel is gorgeous, right on the beach, with many shops, restaurants, and boardwalk to walk on. The hotel has a block of rooms reserved for the [...]